Early this morning I had a really intense synesthesia experience. Years ago I would get these when hearing or playing music, I would see colors and textures.. somewhat muted unless I was very relaxed. This morning the colors were vibrant and intense and very glossy. Lots of blues, greens and...
I've flirted with the idea of making an account for weeks now, I’ve been unwilling to feed into my own mounting paranoia, and until now I’ve been avoiding looking into the symptoms at all, but I’ve also found myself in need of community and the presence of those who can help me understand what...
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A few days ago, Tom told me he woke up and didn't know where he was. I didn't pay much attention because he has done this in the past...long before ALS. But then Friday night he woke me up and asked me if I heard music. I did not and my hearing is much better than his. Yesterday morning he tried...
I am new to Eyegaze and wanted to hear from some of you experienced users about what system you have and what applications you like.
I received my TobIi I15+ System a few weeks ago and have gotten pretty good at controlling it with my eyes. I can still speak clearly, but no longer can use...
Hi Everyone
I am very new to this forum, but I thought that writing about my current difficulties on here would be a cathartic experience. From reading previous posts on here, it does not seem that my experience is a unique one.
Let me please give you first some background, which will...
Hello everyone and thanks so much for your time and input. Im female 39 in Australia. The question I have (yes I have read the stickies and so sorry to bother everyone) is around the weakness. I went to a neurologist 6 months ago with unsmooth jerky uncoordinated movements and twitching all over...
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Hello.
I've lurked here on the forum since my mother's initial diagnosis in early January. That initial diagnosis was followed by a confirmation at our local ALS Clinic three weeks later. My mother has had significant health problems since 2002, so while she experienced symptoms for many...
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I am selling a Tobii i-12 Communication device. This device was unboxed January 2014 and not used until July 2014. Family member passed away early 2015. It was only used sparingly as a communication/music device to play music on a powered chair. Our family member, who suffered from ALS...
All,
I know the title is misleading need some help here. Music is my escape and my downloads on my I-Pod (yes I still use one) and phone are getting stale. I listen to mostly classic rock (60's and 70's) some modern country cause it sounds just like what we used to call Southern Rock back in...
I'm always on the lookout for ways to make things easier (and more fun). I recently got an Amazon Echo. Now from anywhere within speaking distance I can get news, music, weather and ask questions, some of which the Echo knows the answers.
Last night we installed Philips hue lux bulbs in some...