music

  1. L

    My Dad Died April 9th

    It has been such a busy time and I hadn't had a chance to post earlier. He was diagnosed 3/23/2017 and progressed rapidly. By May 2017 he was on AVAPS, July 25th he got a feeding tube and by December he had pneumonia and after being intubated for a couple of weeks went home on the Trilogy. He...
  2. L

    Outer Space Jokes

    Q: What is a spaceman's favorite chocolate? A: A marsbar! Q: Why did the sun go to school? A: To get brighter! Q: How do you know when the moon has enough to eat? A: When it's full. Q: What kind of music do planets sing? A: Neptunes! Q: What's a light-year? A: The same as a regular...
  3. C

    Extremely Concerned and worried about my future...

    Hello everyone. I would first like to say that all of you who contribute to this forum are incredibely strong and many people, such as me, tremendously value your efforts. I have been lurking this forum for the past two-three weeks. I am extremely concerned about what is going on with my body...
  4. chally

    R&r

    Just spent four days at a high end resort called “ the greenbrier” which is 10 mi from our house. A real vacation for us now has to be close and this place has it all quite, relaxing,food,swim,massage tea time, movies, gambling, music etc Need to spoil my cals once in awhile!
  5. KarenNWendyn

    ALS diagnosis update

    Back in July/ August, I posted that my neuromuscular disease specialist felt I had a definite motor neuron disease, possibly ALS. However he didn’t want to officially confirm ALS at that time because I didn’t have much in the way of upper motor neuron findings and he also wanted to document...
  6. J

    Two months yesterday

    Hi, Just looking for someone to talk to. I feel so depressed the past few days. I mean I've been sad and have my moments but it just feels like it's taken over my body. I keep picturing Jay when his breathing slowed and then his final breath. I go to work every day and then to go to my...
  7. R

    Re Visiting

    Hi Folks, The past 16 months have been a challenge for me. I had not been able to get a diagnosis during that time. I had many symptoms that presented to be similar to ALS symptoms - calf atrophy, twitching, abnormal emg, etc. My neurologist would not diagnosis me with ALS, nor would he rule it...
  8. R

    Worried I might have ALS

    So, Ive been worried about the possibility that I have ALS. Increasingly extensive research has only reinforced this in my mind. Im 24 and I've been experiencing fasiculations for about 4 months. They arent localized and have been all over with varying intensity (oftentimes the ones in my neck...
  9. S

    Time to Vent

    Well it's time to vent again. It seems like there is some appointment of some kind every day. Thank God that I only work occasionally. I don't know how you people with FT jobs do it all. My PALS keeps FB messaging me for this and that. I can barely take a shower or eat some days. Then I have my...
  10. K

    Synesthesia

    Early this morning I had a really intense synesthesia experience. Years ago I would get these when hearing or playing music, I would see colors and textures.. somewhat muted unless I was very relaxed. This morning the colors were vibrant and intense and very glossy. Lots of blues, greens and...
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