muscles

  1. A

    Curious about my symptoms

    Hello I have been having some muscle twitches for about 3 weeks. I went to a primary care doctor and she said that my reflexes were normal and to relax about my symptoms. I don’t seem to have any strength lost but have been having trouble sleeping due to my muscles twitching. It feels like a...
  2. A

    Concerned. Symptoms and family histor

    I have progressive atrophy of my right leg along with abdominal twitches and twitches in calf thighs and buttocks....my peroneal and calf muscle of right leg has withered...my mother and maternal aunt died of als....but my neurons are not ready to take me as a patient because they say you are...
  3. A

    6 months in. Symptoms progressing. Doctors perplexed

    Hi all. Brief recap: Sept 2017 - ring finger twitch/tremor starts Oct 2017 - spread to other fingers Nov 2017 - unremarkable EMG Dec 2017- tremor spreads to other hand Feb 2018 - repeat EMG unremarkable in hands and arms, but “irregular” in face and leg...yet somehow simultaneously...
  4. M

    I'm sorry to ask... but I'm really scared.

    I'm really really really sorry to annoy you all, it's probably more the anxiety than me writing this but I'm really scared no matter how much I read the "That gives a percentage of 0.0001% or a 1 in million chance . . . and that's at best." I'm just unable to calm. I'm female, 31 (ok, i will...
  5. D

    Upper arm pain

    Hey everyone! My mother has been experiencing upper arm pain sporadically for the last few weeks. It has been localized to the upper arm and it isn't constant at the moment but it is appearing more often, and the upper arm muscles are hardening. I was wondering if anyone else has come across this?
  6. KarenNWendyn

    Headaches

    I’ve been waking in the mornings more and more with a dull headache. It usually improves as the day goes on. I know that can be a sign of CO2 retention, but I don’t feel short of breath and my most recent FVC was 75%. I do sleep lying flat, and it feels comfortable. I’ve also considered...
  7. K

    Sitting upright

    My core and back muscles are very weak and I flop to the side or forward . Anyone have suggestions? Also my spine is protuding which makes the wheelchair uncomfortable, looking fof suggestions here as well .
  8. L

    Reversible breathing issues with IVIG in ALS and MG

    Dear PALS, I've had an earlier thread regarding my mother, who's diagnosis is still uncertain. Both Laurie and Karen were very helpful. A short intro: My mother is a very complex case and has shortness of breath, orthopnea, loss of strength in upper arms and some atrophy of the deltoid...
  9. D

    My symptoms and a small word to all people suffering from this disease

    Hello there, I first want to tell you that I feel highly sorry for all of you who have been diagnostised with this terrible desease. Especially for the people like me, who ask stupid questions to people who actually suffer from severe conditions. But here is my story: It all started 3 month...
  10. T

    One-sided atrophy

    About three months ago I started getting serious twitches in my calves. I had recently restarted strenuous exercise so I didn't think much of it. But they persisted for weeks so I got a referral to a neurologist. In the months since, the calf twitching has decreased but I have developed...
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