muscles

  1. S

    Symptoms

    Hi back in November while cooking I had bad pain in right hand went to doc did blood tests xray nothing came up went to physio he noticed wasted muscle in between thumb and forefinger advised go to neuro she didn't think I had adl bfubding writing hard painful hand feels weak had a emg test...
  2. N

    NEEd help i am new , hi to all brave people !

    Im 41 female had strange spasm in october in my buttock area , 3 month was limping had ache burning in coccyx area my left side face is weird as well tingling twitching pressing pulling episodes now my fave is slightly thinner than right had weakness right hand now its in left hand , had nights...
  3. M

    Parent with C9 ALS

    Hi, My mom recently got diagnosed with ALS and tested positive for the C9 gene. I am going to get tested soon- I am pregnant and due in a couple of months now. But I just need to know either way. I am driving myself crazy thinking that everything is the start of ALS, but I know I am stressed...
  4. B

    My symptoms, Any help is appreciated.

    hello. My name is Brianna and I'm 26 years old. I have read the stickies and out of all the symptoms I've been experiencing the main one that concerns me is atrophy. I'll try to give a brief timeline of my symptoms and any feed back is greatly appreciated. I promise not to drag anything on if me...
  5. M

    Could this be a sign of ALS?

    Hello everyone. First of all, I would like to sat that I’m really sorry you have to go through this awful disease and that I’m keeping in you in my prayers. And thank you so much for all the reassurance you provide people who are struggling with getting diagnosed or are just simoly worried about...
  6. K

    Is this ALS?15 years old

    Hello everyone, I am sorry to bother you. I am from China and my English is not good. I am 15 years old and no one in my family has a nervous system disease. I learned about amyotrophic lateral sclerosis a month ago. Soon I felt that my right arm was weak and my left arm was weak. I went to...
  7. P

    Upcoming EMG and Terrified

    Hi everyone. Thank you for welcoming me onto this site. I read the sticky, so I'll try my best to adhere to the statements there. I'm 27, female, and have been having concerning symptoms since mid-September 2018. Symptoms first started in my left hand and forearm. Started with twitching and...
  8. W

    Fear of als

    Hey everyone, Over the past 3-4 days I have experienced twitching that I first noticed in my right bicep to now all over in different body parts and recently have felt like cramps all over my body when I flex these muscles. I have been terrified for als. Anything will help, please.
  9. S

    EMG results

    Hello guys...I am a 28 years old and I started having muscle twitches in December 2018. I had a EMG today and it showed fasciculations in every muscle, but also fibrillations and polyphasics in some muscles. My doctor was worried and would like to repeat the test in two months....I am scared...
  10. K

    Trilogy Settings with Progression

    My PALS has been using a Trilogy for the past year. His latest FVC was 26%, with MIP at 20 and MEP at 32. We can tell his weakening muscles continue to affect his breathing, just since Clinic in February. He had some issues with air hunger at night and increasing EPAP from 6 to 8 took care of...
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