muscle

  1. W

    Does this sound like ALS?

    I apologize if I accidentally posted this twice. I tried posting earlier but I’m afraid I did something wrong and lost the post because I can’t find it. I’ll try to re-type my sentiments from my earlier post... I went to visit my PCP regarding muscle twitching. I have had twitching for about...
  2. K

    Club membership at hand

    Well, damn. My local neurologist, after two months of elimination tests, has now indicated likely NMD, with ALS being the most likely candidate. He basically kicked the can down the road and referred me to Dr. Pulley at Jacksonville Shands. We see him in late April for a second EMG and opinion...
  3. W

    Should I be worried?

    Hello and thanks in advance for reading this and giving me some direction. I went to my PCP due to muscle twitching. At first, it was all over twitching. Now it seems more centralized, as in the sides of both calves, the back of my thighs, top and bottom of my foot. There are times I will...
  4. I

    Facial muscles

    I was diagnosed with progressive Bulbar Palsy I. January 2018. Although I could no longer swallow or speak by April of 2018, a PEG. helped and things were ok until Christmas of 2018. My limbs are weakening but I’m making the best of that. My biggest worry is my eyes. Even after sleeping well...
  5. S

    Symptoms

    Hi my issue started in Nov was cooking bad pain in right hand went to doc blood test xray all fine physio noticed atrophy in my hand between thumb and forefinger went to neuro she didn't think I had adl had a emg result one slightly abnormal muscle in hand all others OK ongoing tingling numbness...
  6. S

    Symptoms

    Hi back in November while cooking I had bad pain in right hand went to doc did blood tests xray nothing came up went to physio he noticed wasted muscle in between thumb and forefinger advised go to neuro she didn't think I had adl bfubding writing hard painful hand feels weak had a emg test...
  7. L

    Your avarage DIHALS?

    Dear forum users, I've read over several threads and you are so patient and kind to everyone that visits, I take my hat off to you. I tried my best not to post here, telling myself I am silly for thinking and regret the day I thought it would be a neat idea to Google my symptoms (this should be...
  8. M

    Parent with C9 ALS

    Hi, My mom recently got diagnosed with ALS and tested positive for the C9 gene. I am going to get tested soon- I am pregnant and due in a couple of months now. But I just need to know either way. I am driving myself crazy thinking that everything is the start of ALS, but I know I am stressed...
  9. S

    Bulbar?

    What is the horse ness like with Bilbao onset? I’ve had twitching for 4 months with no muscle failure but I am horse now but I’m wondering if it’s allerogoes or a mild cold or bulbar?
  10. S

    Advice appreciated

    Good morning and thank you for accepting me to post on this board. I did not ever think I would be making a post like this. I have read through the stickies and the previous posts regarding twitching and symptoms. I still had a few questions, if you don't mind. I have been to my PCP and...
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