So, I am not here for twitching. I never suspected ALS until my PT mentioned needing to see neurology/ortho for a muscle biopsy.
I tore my gastrocnemius in May. It is not healing. Not responding to PT. I have lost an inch of muscle mass in the last 5 weeks in that calf. I was told...
5 Years ago drop foot lasted 6 months. Then cramping, stiffness. 2 Years later weakness set in. Fasciculations the whole time.
2 EMGs revealed no ALS. After 4 years my insurance company hire Grand Rounds (an independent professional opinion) to access my records from 2012 to now. Their...
Hello,
Here is my history:
2013-2014: 2-3 times a year, sclera of left eye would turn red and eye would be very painful when focusing on objects within 2-3 feet (such as reading, looking at hands, etc.). Treated w/ antibiotic and then steroid eye drops by PCP with no success.
09/2014...
I thought I would post this here in hopes of helping others who have either been told they possibly have als or those who believe they do.
I was told I had possible als due to four abnormal emg and clinical exams, however there were always some symptoms that did not add up and I have very...
Hello,
I was dx with ALS last week, after much testing and an earlier diagnosis of polymyositis. I have been told my case is atypical. My first symptom was leg weakness, which began in thighs before becoming distal, and with a dx of polymyositis had been on a run of Prednisone, on which I...
It seems that this roller coaster is finally coming to its last stop, 21 months from the beginning of emg/ncs and referral upon referral we find ourselves in limbo but with the advice of those on this forum with a competent Dr.
When I read through posts I see a very common theme the g is very...
Since I first posted on this site I have had so much helpful and useful information. I thank all of the moderators for all of your patience understanding blunt but true words and suggestions.
My last postings were about my frustration with the care I was receiving. I asked the very questions...
Good morning All,
As I just registered a few days ago, I thought I should probably fill in some details about myself and my status.
I am 63, just, and was diagnosed Jan 14, 2016. In June of 2014 I started to notice fasics' running rampant. My PCP didn't seem concerned even with an elevated...
All of you are very smart and I am not sure how I should approach my neuromuscular doctor. We are very disappointed in the clinic we are using. The first major problem happened in November after a clinic visit in October there was talk of a muscle biopsy the nurse called me and asked me to come...
als
back
baclofen
biopsy
breathing
clinic
confusing
cure
diagnosis
emg
eye
information
mnd
mri
musclemusclebiopsymuscle wasting
physical therapy
pls
problem
sad
speech
swallowing
test
tests
therapy
treatment
I am really now unsure where to go from here. Have been trying to keep posts at a minimum, and here is why.
Had appointment with my primary doc. He said to keep my follow up with #2 neurologist. If he didn't send me on to the ALS clinic for eval, then go back to the 1st, and see if she can make...
als
als clinic
als clinics
autoimmune
back
biopsy
brain
clinic
clinics
diagnosis
eyes
immune
info
musclemusclebiopsy
neurologist
problems
tests
tongue
unsure