So, I am not here for twitching. I never suspected ALS until my PT mentioned needing to see neurology/ortho for a muscle biopsy.
I tore my gastrocnemius in May. It is not healing. Not responding to PT. I have lost an inch of muscle mass in the last 5 weeks in that calf. I was told...
5 Years ago drop foot lasted 6 months. Then cramping, stiffness. 2 Years later weakness set in. Fasciculations the whole time.
2 EMGs revealed no ALS. After 4 years my insurance company hire Grand Rounds (an independent professional opinion) to access my records from 2012 to now. Their...
Here is my history:
2013-2014: 2-3 times a year, sclera of left eye would turn red and eye would be very painful when focusing on objects within 2-3 feet (such as reading, looking at hands, etc.). Treated w/ antibiotic and then steroid eye drops by PCP with no success.
I thought I would post this here in hopes of helping others who have either been told they possibly have als or those who believe they do.
I was told I had possible als due to four abnormal emg and clinical exams, however there were always some symptoms that did not add up and I have very...
I was dx with ALS last week, after much testing and an earlier diagnosis of polymyositis. I have been told my case is atypical. My first symptom was leg weakness, which began in thighs before becoming distal, and with a dx of polymyositis had been on a run of Prednisone, on which I...
It seems that this roller coaster is finally coming to its last stop, 21 months from the beginning of emg/ncs and referral upon referral we find ourselves in limbo but with the advice of those on this forum with a competent Dr.
When I read through posts I see a very common theme the g is very...
Since I first posted on this site I have had so much helpful and useful information. I thank all of the moderators for all of your patience understanding blunt but true words and suggestions.
My last postings were about my frustration with the care I was receiving. I asked the very questions...
Good morning All,
As I just registered a few days ago, I thought I should probably fill in some details about myself and my status.
I am 63, just, and was diagnosed Jan 14, 2016. In June of 2014 I started to notice fasics' running rampant. My PCP didn't seem concerned even with an elevated...
All of you are very smart and I am not sure how I should approach my neuromuscular doctor. We are very disappointed in the clinic we are using. The first major problem happened in November after a clinic visit in October there was talk of a muscle biopsy the nurse called me and asked me to come...
I am really now unsure where to go from here. Have been trying to keep posts at a minimum, and here is why.
Had appointment with my primary doc. He said to keep my follow up with #2 neurologist. If he didn't send me on to the ALS clinic for eval, then go back to the 1st, and see if she can make...