Hello members!
I know I will be welcomed. Thank you for that! I have been reading the site for a little while and see how supportive this family is. I am sorry that you are all traveling on such a difficult road.
I am a 49 year old female, wife and mother of 3 grown daughters...
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I too am confused. Less than 2wks ago, you had a NM specialist tell you that you did not have ALS and did not need a muscle biopsy. Now, you have been told its an "aggressive form of ALS leaving you with months to live". I don't understand. Did the doctor do a u-turn o you? What happened? It...
I haven't posted for awhile because Sara and myself have been waiting to see the neuro again. We went last week and the good news is she certainly doesn't have ALS.
Her blood test came back with slightly elevated muscle enzymes. The doc didn't specify which so I don't know if he was referring to...
Hello all,
I'm a first time poster (27y, m) from Melbourne, Aus, and would appreciate any feedback. I am pretty sure I have ALS, but haven't been officially diagnosed yet. My symptoms started mid July, when I noticed a burning feeling in my toes. Over the next month this had spread all over...
My dear and caring friend Annmarie went to see Dr. Simmons today. She felt as if she was going to see the grim reaper all week. She has had EMG's and all the other testing with fluctuating diagnoses and symptoms. Her neuro at Hershey, who says he has diagnosed many ALS patient's and that she...
Please try not to read too much into the date that they have asked you to come in. Look what happened with Jamie. He was totally convinced that he could hear something different in the nurse's voice on the phone and that he was about to get the bad news. But lo and behold, he was wrong and his...
I've found very little information on Upper Motor Neuron onset ALS. Did anyone here have UMN onset? At this point I have definite upper motor neuron involvement plus fasiculations & lower motor neuron indicators on my muscle biopsy (fiber type grouping, atrophy, past...
I posted a few months ago on this site, but I have a little more information and worsened symptoms, so I just wanted to hear other people's experience with ALS/MNDs. I had several debilitating symptoms that started 3 years ago before the motor nerve involvement, but I won't go into detail for...
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Hi, My name is Lisa..
My story starts 2 years ago . When my symptoms began.. I initially thought I had a stroke on my left side.. My husband took me to the er and all the test came out fine..
I would say the weakness lasted about a week..
A couple months went by and then again, started having...
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