He wakes up in the middle of the night choking on saliva and nothing helps. I mean - the only thing he tries is cough it out, and of course this doesn't help. His doctor - an anestesiologist with no experience with bulbar ALS, doesn't have any advice.
My dad suffers so much he now often says he...
my last thread was closed
I have been going round and round with notorious twitches and feet achy weirdness for a while below is time lin
nov16 bilateral feet feel strange
jan 17 emg diagnosed with neuropathy with normal ncv
may17 emg diagnosed with sensimotor poloneurapthy with normal ncv
aug...
als
anxiety
back
bfs
bulbar
diagnosed
emg
fasciculations
ice
life
mucus
neurologist
onset
problem
research
sad
scared
swallow
swallowing
symptom
test
tongue
twitches
weakness
Hi
First i would let you know english is not my first language.
I read a lot of your post like everyday everytime and i totally support you.
My story is
1- in septemver i had a lots of burning calves and when i watched at them i can saw and feel the fasciculations only in them for 1 month.I...
abdomen
arm
atrophy
back
bulbar
bulbar onset
burning
crying
eating
emg
fasciculations
food
mucus
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nose
onset
scared
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wrong
Hi All,
My bulbar onset dad who refuses a peg has more and more problems with not being able to cough out whatever bothers him in his throat, or deeper than throat, and also with saliva or mucus - I am not sure he knows which one is the bigger problem; he seems to think it's saliva, and its...
My father has had an on going issue wirh his speech, hes been slurring his words since about Feb '17 and even at 1 point his boss asked if hes been drinking, fast forward now and he still struggles to speak, he has alot of excess mucus and constantly has to spit because of this. He's also choked...
i found articles...
https://sg.news.yahoo.com/schizophrenia-drug-could-treat-als-101803085.html
any comments?
i think that having ALS is a kind of license to do everything with ourselves, so why dont we try? i am the first one to try.
My boyfriend is newly on vent/trach. At the hospital we were told by an MD that he will not be allowed to eat or drink again (he has a feeding tube).
At the L-Tach rehab the speech therapist gave him mashed potatoes and he aspirated them and then got pneumonia.
He eventually went to...
My trache was installed six weeks ago and changed four weeks ago. It is a soft seal cuff model that comes with an inner cannula. However, the inner cannula was not installed in the hospital nor was I given any instructions regarding it. Wondering if lack of an inner cannula might have some...