1. A

    Waiting for Neurology Follow Up Appointment

    First of all, thank you to everyone taking the time to read this. I appreciate and respect your knowledge and look forward to your feedback. I'm not sure where to start. So I will pick last summer, August I believe it was. I got on my bike and couldn't ride for more than a couple of...
  2. J

    Any information would be helpful.

    Good evening everyone. I have a few questions regarding some new symptoms I have been exhibiting. Approximately 3 weeks ago I was hit with a couple of weeks of strange dizzyness. The feeling you get when you turn your head and it takes a few seconds for everything to catch up. As this...
  3. R

    Think I have ALS and have some questions

    So first off, I’m a male of 21yo. I’ve been healthy my whole life up until 2017, I was trying to lose weight from 190 and went down to 115 as of now, I was trying to lose weight but now I can’t seem to keep weight on. So about a month ago I started to develop bad back pain in my lower back, at...
  4. J

    Can not say to dr. when my ALS started, so he cant say if i'm slow/fast progressive

    can not say when my als started. i had dizzines and stil have it and that's why i visited neurologist. i felt something is wrong in spring 2015., something with balance. tripping, falling etc. did all tests by 06 /2016 and there were no signs at all. emng ok, all als tests ok, even i felt bad...
  5. P


    Hello Everyone! This is my first post so bare with me. I'll spare everyone the details that took me from Aug. 2016 to now but as of now my Neurologist believes I may have PLS. I have had one MRI, 2 EMG's, several blood test and my next visit with her is Sept. 25th. I am seeing another...
  6. K

    Just looking for input

    Hi, I am posting about symptoms that I have been seeing in my father over the last 2 years. He is 73. He started having trouble swallowing his food about 2 years ago. He seen several doctors, and had a scope done, and it was brushed off as aging. He was told to chew his food better, and...
  7. G

    MRI question

    I just had an MRI to see if my pituitary tumor has shrunk. Very uncomfortable on back with the build-up of saliva and trying to swallow. Does anyone know if they can do an MRI on your laying on your side or stomach?
  8. F

    Muscle weakness, atrophy

    Hello all, First I would like to say my heart goes out to those struggling with this horrible disease. I’m writing today to ask opinions about my Dad’s situation. I will try to be brief, but thorough. Nov. 2017 - Dad swears he remembers falling while outside, and then getting up and moving...
  9. W


    For some 10 years now I have had problems almost permanently, although good periods and not so good periods with my mouth. Difficulties with lips feeling fatigued after talking at length. Difficulties with my tongue in the same regard. Sometimes dry mouth, sometimes an apparent excess of saliva...
  10. W

    Bulbar onset?

    Dear, currently I am quite a bit worried. About one year ago I had a brain zap in my head and afterwards I had fascisculations everywhere in body which steadily became more intense. My thumb was acting very weird, when I was using it or using with a slight force it was 'bouncing' back or...