movement

  1. C

    Tongue Quiver

    Good afternoon, My name is Chris and I am a 29 year old male. For the last 4 months the sides of my tongue have quivered non-stop. The best way to describe it is as if the sides of my tongue move left and right at an incredibly rapid pace while the middle maintains it's placement. I can not...
  2. T

    Bulbar als?

    Hi 6 months ago I got very sick lasted a month. Couldn't breathe hard time swallowing and talking. Lost 9 lbs in a week. Got rubber legs. Basically became wheelchair bound because every time I would walk I couldn't breathe. They put me on a ton of asthma meds which made me worse. Testing heart...
  3. C

    Indian Ginseng and Velvet Bean

    This was on ALSnews this morning and i thought i’d share. My Dad already takes Indian Ginseng and now we’ll go get the velvet bean, assuming the AMX-0035 trial allows it...
  4. L

    Concerned

    Hello all. I've had a few of what I believe could be ALS-like symptoms. I was wondering what others might think. I've had muscle twitches for what I believe to be 4 months now. It started off in just my arms and calves, but after a while they seemed to spread to other parts of my body, such as...
  5. L

    I feel helpless

    For the last four months, I have experienced a rapid decline in health. It started with severe constipation, in which after every series of gastrointestinal test, nothing was found,except that my parsistalsis had slowed tremendously. From that point I began having problems with my legs, numbness...
  6. KarenNWendyn

    Dysesthesias as part of ALS?

    I’m wondering if any other PALS have experienced this or know if it’s part of ALS — My presenting “failure” with ALS was left foot drop. However, about 3-4 years prior to that foot drop, I noticed an odd sensation in the same foot — not exactly a pain, and not a numbness, but more like a...
  7. BlsdMama

    And I'm back...

    Not without a fuss, mind you. Mayo found an antibody (glycine receptor antibody) and wanted to try several treatments for limb variant stiff person syndrome. Alas, nope. I felt the fourth trial improved my balance (quite a lot actually) but they can see no improvement, plus, everything has...
  8. Kristina1

    when a limb falls asleep

    Just wondering what others do when a limb/body part that you can't move much (or at all) falls asleep. Right now I'm thinking of my hand, which I previously would have opened and closed, wiggled fingers, and shaken out until the pins and needles went away. Right now I can only clumsily, slowly...
  9. H

    Help on Trach

    Hi , my name is Jennifer and my mom is diagnosed as ALS last year(8/2017). Recently, her pulmonary doctor recommended my mom for the trach due to using 24 hours of trilogy. i am also researching about it but couldnt find the answer or opinion that that my mom has after she gets trach (Note: She...
  10. J

    Potential ALS Question

    I'm a 47 year old male. In May, I noticed a tremor with movement in my hands. My initial diagnosis was Essential Tremor. Over the past few weeks my symptoms have increased. Today all my symptoms include tremor with movement, shaky feelings and fasciculations in legs, abdomen, and arms, and...
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