Darcey received her Tobii late last year. She could not use it at first as they neglected to provide her with a mount for her wheelchair. Now she has a mount and has begun to use it. One of her greatest joys is being able to communicate with her friends on Facebook (FB). As she still comes...
My husband has brought up a delicate problem that has been developing over the last week :oops:
He is having trouble cleaning himself after a bowel movement. Not the reaching part but grasping the toilet paper and applying sufficient pressure to clean (I hope this is not TMI for everyone). At...
Hello everyone!
First of all I'd like to apologize from everyone who has ALS diagnosed. It is not my intention to mock anyone or sound disrespectful. I genuinely wish to get view from people who are experiencing the disease first hand.
I'm a 36 year old male and I have to admit that I have...
als
als?
anxiety
back
brain
bulbar
bulbar als
clinical
diagnosed
family
father
life
movement
mri
muscles
neurologist
neurology
night
professor
saliva
shower
speech
swallow
symptoms
tongue
wanted
work
young
Hi, my previous thread ended up rambling on so I am glad it has closed.
I have not been on this site for a while as I was taking some of the members advice, and my EMG is due on 8/4 so hopefully most of my concerns will be addressed then.
However, my quick question for the day is regarding limb...
Dear Forum members,
I read the sticky and searched a lot in the internet, still I am not sure if I can exclude I have MND.
That's my story. My symptoms started in the left hand around 2 1/2 years ago. First some uncontrollable muscle movement and then 6 month later the atrophy was visible. I...
acupuncture
arm
atrophy
emg
finger
improvement
media
mnd
motor neuron disease
movement
muscle
muscles
neurologist
pain
questions
story
symptoms
test
thumb
treatment
vitamins
wrist
All hands, I am new here and as many others I am here because of my fear of having ALS
I have passed many stages of fear by suspecting one muscle after another, the reason was the general feeling that my dominant hand was not that good as it used to be.
I spent many hours trying to find the...
Question for all of my favourite people.
Hubby woke up this morning and had a 'rash' looking red mark in his armpits. Right is worse than left. As he has very little movement in his arms it looks as though it is not getting enough air and/or rubbing.
I am sure that many of you have experienced...
Hi
My Mother was diagnosed with bulbar onset ALS summer 2012. She is currently almost completely paralyzed (some hand and arm movement), on bipap 24/7, has peg tube, in bed at all times due to sitting up it hurts to breath (with bipap), on Hospice.
She is on anxiety medications and some pain...
The last year has been filled with many odd and unanswered things. I am into bodybuilding as a hobby. About 8 months ago I started noticing my form was off no matter how hard I tried I couldn't get the left side to match the right. Fast forward a few months, fatigued during normal activites, out...
On The Wings of Sparrows
Bound by movement.
Bound by speach.
Bound by the unknown and fear.
I close my eyes and dream.
The Ties that binds falls apart.
And seek the flight of sparrows.
To dance on the freedom of the wind.
Not an eagle nor falcon.
Sometimes overlooked but always there.
Reality...