motor neuron disease

  1. D

    Finding a neurologist who knows...

    Hi everyone, I am still stuck in a diagnostic disaster. I am an American living in northern Spain, and Spain has both private health care and public (free) health care. I started my journey in the private system because it goes faster and it all started with just an ankle problem. In June this...
  2. W

    New to caring for MND/possible ALS

    Hi all - I am new to this forum and new to this role as a care giver to a patient with motor neuron disease. I have been looking for a place to be able to share what I am going through with people who can understand. My husband and I met in 2009 and married in June 2014. In May 2016, we saw his...
  3. S

    Newbie with some confusion

    My journey began nearly 30 years ago, when I woke up one morning and couldn't walk. I previously had a bullseye tick bite, and assumed Lyme disease. Every test taken since has been negative. I had symptoms come and go for many years, with exhaustion, stiffness, and leg weakness being my main...
  4. S

    An update from my previous post...

    I'm sorry, I tried to update on previous thread but it was closed. I guess it's been too long. I'm still in limbo trying to figure out what's wrong with me. I tell you, the time between getting into docs and waiting to have tests done and then waiting for follow up to get results is...
  5. D

    new Upper MND diagnosis

    Hey everyone, I was just diagnosed today with upper motor neuron disease. I have been sent to a different team of doctors to get genetic testing to rule out HSP, so if it's not that, then I'm looking at PLS. I'm only 28 years old, and from everything I've read about PLS, a diagnosis is...
  6. G

    BioVerity, a vitamin supplement

    This is being discussed in the fb group Research on Motor Neuron Disease. A couple of PhD's at McMaster University in Canada have been working on a vitamin supplement for over 15 years. The mix of 30 over the counter vitamins and supplements, which seems to prevent and reverse damage to cells...
  7. S

    MND - ALS or Another Type?

    Hello all, This may be a welcome break from the typical hypochondriac's posts on this part of the forum (and no offense to others posting, just trying to make light of my situation.) I come to you guys under incredibly sad circumstances. My dad (age 67) who I am very close with, was recently...
  8. M

    Dad has ALS

    I posted already in the general discussion forum but I should have started here. I am a new full time caregiver of my 82 year old father who was diagnosed last year. It probably isn't technically ALS but a motor neuron disease very similar. I have just this month become his full time...
  9. J

    My Boyfriend of 6 years who is 27

    Hi I am 24 years old my boyfrind is 27 and has been having signs of ALS.This all started 2 months ago he came up to me n was like liok at my tongue it keeps shaking which we now know are called faciculations so i made him go to the hospital he said he thought it was normal but i told him it...
  10. R

    Going in for a 4th EMG

    Hi guys, Been on here a few times and unfortunately back one more time however im scheduled to go in for a 4th Emg tomorrow over a span of almost 2 years the first emg i did was in aug 2014 and the last one was in november 2015, first 3 didnt find anything that would suggest a motor neuron...
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