motor neuron disease

  1. KarenNWendyn

    ALS diagnosis update

    Back in July/ August, I posted that my neuromuscular disease specialist felt I had a definite motor neuron disease, possibly ALS. However he didn’t want to officially confirm ALS at that time because I didn’t have much in the way of upper motor neuron findings and he also wanted to document...
  2. F

    Mum diseas,strange situation

    Hello all and this is my first post on the forum. Sorry for my unperfect english but i'm italian... :-) Let me introduce my questions... 4 years ago my mum started to have some problems with left leg and especially in walking. She put her foot in a strange way,like if she hasn't the control...
  3. G

    Just some questions

    Hi everybody I was diagnosed with motor neuron disease about ten years ago, and since, I’ve been told I don’t have motor neuron disease, and I’ve also been told that I may have a neuropathy, or some form of limb girdle muscular dystrophy. I’ll try to make this pithy, but it’s a long story, if...
  4. KarenNWendyn

    Is my course rapid?

    Hi everyone. I'm recently diagnosed with "a definite motor neuron disease, probably ALS" per my neurologist. Cramps initially in legs started sometime in 2016. In October '16, I had a strange sensation in my left ankle and thought I had a tendon injury. That sensation lasted 3 months and...
  5. N

    Tips on dealing with MND and Dimentia

    Hello all. This is my first visit to this forum and I'm badly need of some caregiver support. I am currently in a foreign country taking care of my aunt who is diagnosed with Motor Neuron Disease and Dimentia. She cannot speak, can barely swallow, and is starting to lose the ability to walk. Her...
  6. F

    New Film about ALS/MND, narrated by Colin Farrell

    Hi there, There is a documentary film coming out soon called ITS NOT YET DARK which many here may be interested in. It will be available On Demand in the US on August 4th (iTunes, Amazon Instant, Vudu, Google Play). Here's the trailer and the synopsis...
  7. C

    Abnormal EMG - Feedback Appreciated

    Hi Everyone, I've been lurking for a while now but decided to post today after my EMG results came back in. I would like to preface by saying that I really appreciate anyone's feedback. No matter the outcome of my situation, this process has really opened my eyes and encouraged me to get more...
  8. W

    Dad diagnosed with ALS but I'm not convinced

    Hello everyone, This is my first post to the ALS forum and my 62 year old dad was diagnosed with ALS several days ago by a neurologist in Vancouver. He's seen two other neurologists prior who could not discern what issue he was having but I am not totally convinced that ALS is what he has...
  9. S

    Help with symptoms

    Hi all, I’m hoping that someone might be able to offer some insight into some concerns I have. I am a 30 year old Irish male with a history of hypertension (family history), overweight but physically strong and weight lift in the gym / crossfit etc. I also have a history of degenerative disc...
  10. B

    Hi, newly diagnosed with MND. Question about SSDI

    Hi all, thanks for being here. I've recently been diagnosed with Motor Neuron Disease. Specifically I have weakness in my right hand/arm. I'm doing some reading/research here tonight and am wondering about SSDI....my diagnosis is MND so far...not specifically ALS. If I were to file for SSDI...
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