I was recently diagnosed with Post Radiation Lower Motor Neuron Disorder that was brought on by large doses of radiation to my neck when I was treated for Stage IV Throat Cancer in 2003. The fasiculations began months after treatment and have progressed to severe pain, fibrosis of the scm and...
An interesting ALS misdignosis article:
Cervicothoracic Intradural Arachnoid Cyst Misdiagnosed as Motor Neuron Disease
Case Reports in MedicineVolume 2010 (2010), Article ID 261657, 4 pagesdoi:10.1155/2010/261657Case Report
Cervicothoracic Intradural Arachnoid Cyst Misdiagnosed as Motor Neuron...
Small rant/muse coming up.
I have just dropped my mum off to play bridge this morning. I think she is amazing to be playing as she cannot speak to bid or hold the cards. But with use of various devices and a caring bridge partner she has a fab time. Her mind is spry & she's usually on the...
This past week Jim's Aunt Mary and I attended the 7th International Conference on FTD in Indianapolis, IN. Though the actual caregiver portion of the conference was only one day - it kept my whole week full!
To start at square one: Monday was probably the worst day Jim had yet. He was just very...
2nd EMG today and my weakness has progressed so much since the last test and with the other tests I've had that he agrees with the other neuro and is sure I have Motor Neuron Disease (ALS) :-(
He's going to get me the drug Rilutek...guess I have nothing to lose by taking it.
The diagnosis is...
Hello, I have been ‘lurking’ this site for a couple of weeks now, wondering if the progressive disease I have could be a MND. I have a deep respect for all of you that are fighting this horrible disease. I hate to ask but . am worried Here is my story in short form. If you can please read...
It's not a full diagnosis yet, as I am getting bloodwork done on Monday and will have to wait for those results.
But I'm really scared right now so I would appreciate any insight you all can give me.
I'm in Buenos Aires, and my docs speak English, but I think they may use some terms...
Is this correct? I found this on another site>>>
Motor Neuron Disease: This is the protocol for polio. With Polio you can not do any massage because it causes more damage to the motor neurons and you need them to function.
I'm worried about this because I have a Thai massage every day which is...