motor neuron disease

  1. U

    MND and Radiation

    I was recently diagnosed with Post Radiation Lower Motor Neuron Disorder that was brought on by large doses of radiation to my neck when I was treated for Stage IV Throat Cancer in 2003. The fasiculations began months after treatment and have progressed to severe pain, fibrosis of the scm and...
    • Uptown
    • Thread
    • age als breathing choking clinic confused coughing cramping diagnosed go away insurance medicare mnd motor neuron disease muscle muscles neurologist pain progression running story treatment weakness
    • Replies: 7
    • Forum: General discussion about ALS/MND
  2. NotALS!

    Cervicothoracic Intradural Arachnoid Cyst Misdiagnosed as Motor Neuron Disease

    An interesting ALS misdignosis article: Cervicothoracic Intradural Arachnoid Cyst Misdiagnosed as Motor Neuron Disease Case Reports in MedicineVolume 2010 (2010), Article ID 261657, 4 pagesdoi:10.1155/2010/261657Case Report Cervicothoracic Intradural Arachnoid Cyst Misdiagnosed as Motor Neuron...
    • NotALS!
    • Thread
    • abdominal als als symptoms arm atrophy bulbar chronic denervation clinic clinical death denervation depressed depression diagnosis early fasciculations finger foot improvement information media misdiagnosis mnd motor neuron disease mri muscles neck pain neurology onset pain possible als pressure progression stages supplement symptoms tongue treatments usa weakness work
    • Replies: 0
    • Forum: Stories of hope
  3. Jellycat

    Bridge

    Small rant/muse coming up. I have just dropped my mum off to play bridge this morning. I think she is amazing to be playing as she cannot speak to bid or hold the cards. But with use of various devices and a caring bridge partner she has a fab time. Her mind is spry & she's usually on the...
    • Jellycat
    • Thread
    • conversation disability euthanasia life medicine motor neuron disease pain quality of life rant
    • Replies: 5
    • Forum: Current caregivers
  4. shelleynshaggy

    Back from the FTD Conference

    This past week Jim's Aunt Mary and I attended the 7th International Conference on FTD in Indianapolis, IN. Though the actual caregiver portion of the conference was only one day - it kept my whole week full! To start at square one: Monday was probably the worst day Jim had yet. He was just very...
    • shelleynshaggy
    • Thread
    • ability age back bed book brain brother canada caregiver children conference diagnosed documents family fell free ftd ice indianapolis kids motor neuron disease neurologist nih problems support trip website women young
    • Replies: 2
    • Forum: ALS and frontotemporal dementia
  5. L

    Just been diagnosed

    2nd EMG today and my weakness has progressed so much since the last test and with the other tests I've had that he agrees with the other neuro and is sure I have Motor Neuron Disease (ALS) :-( He's going to get me the drug Rilutek...guess I have nothing to lose by taking it. The diagnosis is...
    • landofsmiles
    • Thread
    • 2nd emg als diagnose diagnosed diagnosis emg hours motor neuron disease rilutek test tests weakness
    • Replies: 11
    • Forum: People with ALS (PALS)
  6. R

    Progressive neuro illness---possible MND?

    Hello, I have been ‘lurking’ this site for a couple of weeks now, wondering if the progressive disease I have could be a MND. I have a deep respect for all of you that are fighting this horrible disease. I hate to ask but . am worried Here is my story in short form. If you can please read...
    • RedFlame
    • Thread
    • ability back diagnosis fatigue lift lyme mnd motor neuron disease muscle neurologist no diagnosis pain progression spasms story swallowing taste twitches weakness work worried
    • Replies: 8
    • Forum: Could this be ALS?
  7. B

    just diagnosed with motor neuron disease

    It's not a full diagnosis yet, as I am getting bloodwork done on Monday and will have to wait for those results. But I'm really scared right now so I would appreciate any insight you all can give me. I'm in Buenos Aires, and my docs speak English, but I think they may use some terms...
    • buenosaires
    • Thread
    • acupuncture als symptoms back burning cramps dad depressed diagnosed diagnosis early emg family fingers hawking idiot ignore info medical misdiagnosis mnd mobility money motor neuron disease movement mri muscle muscles neck pain night pain problems progression ring finger scared stress symptoms tests thumb tongue tremor twitches vacation worried wrong young
    • Replies: 74
    • Forum: Could this be ALS?
  8. L

    Massage damages motor neurons?

    Is this correct? I found this on another site>>> Motor Neuron Disease: This is the protocol for polio. With Polio you can not do any massage because it causes more damage to the motor neurons and you need them to function. I'm worried about this because I have a Thai massage every day which is...
  9. Danijela

    Chromosome 9 and MND

    Here are some research news from the UK, via MNDA (motor neuron disease association) Largest genetic study confirms importance of chromosome 9 in MND 20 August 2010 Motor neurone disease (MND) researchers working in collaboration across Europe and the US have confirmed that a region of DNA...
    • Danijela
    • Thread
    • design familial genetic information mnd motor neuron disease neurology research sporadic treatment usa worldwide
    • Replies: 2
    • Forum: Research and trials
  10. C

    Mannatech

    Hi my brother-in-law has been lovingly "given" mannatech by a family member . I am just wondering how these people can say that they can cure motor neuron disease if that was the case this forum would not be here I believe less stress keeping your body and mind well can probably be about the...
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