motor neuron disease

  1. A

    Pls or Als?

    I'm new here and just got the devastating news that my dad may have pls. He had brain and cervical spine mris, nerve conduction test, and emg. Neurologist is guessing pls as nothing else makes sense. He's referring my dad to another neurologist at uc irvine, dr. Mozzafar who has the equipment to...
  2. KarenNWendyn

    Doctors go duck hunting

    A neurologist (specializing in neuromuscular diseases), an internist, a radiologist, a surgeon, and a pathologist go duck hunting. A duck flies over head. The doctors debate over whether it is a duck or some other type of bird. The neurologist comments that the flight pattern is excellent...
  3. B

    Clean Clinical Exam.. Now Gait Abnormality

    Gait Abnormality.. Is this Foot Drop? I will keep this as short as possible out of respect for those reading. I have had fasciculations in right hand starting in December, went away for a while, then came back in January and moved to left hand, arch of right foot. Twitching spread everywhere...
  4. B

    Article about demographics etc for ALS reversals (Dr. Bedlack)

    I follow Dr. Bedlack on twitter and this popped up yesterday....really interesting. Makes me want to try some of the supplements they mentioned: "The odds of taking curcumin, luteolin, cannabidiol, azathioprine, copper, glutathione, vitamin D, and fish oil were higher for cases than for...
  5. C

    Extremely Concerned and worried about my future...

    Hello everyone. I would first like to say that all of you who contribute to this forum are incredibely strong and many people, such as me, tremendously value your efforts. I have been lurking this forum for the past two-three weeks. I am extremely concerned about what is going on with my body...
  6. A

    Cannot wrap my head around this..

    Hello, first and foremost I'm not looking for a diagnosis. Maybe just some positivity! I am a 30 year old female who was living a very healthy, active, meaningful life. The kind of life where I have 2 beautiful children, a wonderful husband, am a former mail carrier (haven't been able to work...
  7. D

    Treatment with cannabis oil, please share your experience

    Dear Sir or Madam. My daddy 57 years old. In November 2017, my loved daddy was diagnosed with amyotrophic lateral sclerosis (ALS disease or motor neuron disease). Bulbar shape in the initial stage. Symptoms: the blurred (smeared) speech, twitching of the muscles of the arms and shoulder girdle...
  8. I

    Anterior Horn Cell Disorder

    Just received a written report of the EMG I had taken in late January. At that visit I was told that I was diagnosed with PBP. The report, however, says that although I was referred for a question of motor neuron disease, the EMG/NCS findings fall far short of electrical criteria for MND...
  9. T

    Am I heade toward an ALS diagnosis

    Greetings to all! I am a first time poster and I want to thank you all in advance for your patience with me, my poor speeling and for any knowledge/support you offer! I have not been officially dianoised with ALS! I am concerned though that it is just a matter of time. I have been to the...
  10. I

    I believe I have respiratory onset ALS

    Hi everyone Try to make long story somewhat short. It started after 10 day long flue-like symptoms in aug. Followed by left-sided chest pain and then breathlessness at exertion. Pain subsided and my breathing issues has stablized somewhat. I have to sleep with inclined bed to not wake up of...
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