Hi there,
My dad was diagnosed with motor neuron disease 48 hours ago! After I day of shock and crying I decided surf the net to find out more about this and it lead me here. I have read through pages and pages trying to see if all the symptoms match. And I have concluded that everyone is...
It seems almost unreal that almost three weeks ago "ALS" was not even in my vocabulary. Not I am, admittedly, frantic and desperate for answers. Yes, I know we should be asking the doctor. However, I feel like the time until the next appointment is almost too much to bare. I feel like I am...
New member requesting help and direction. Here's a rundown of my current symptoms and the last 5-6 months. I'll do my best to summarize.
My current symptoms are:
Subjective weekness in all four limbs, chest, shoulders, back, face, jaws. The weakness in my legs has spread up my legs from my...
ability
ankle
athletic
back
ball
bfs
brain
clean emg
clinical
diagnosed
driving
eating
emg
family
fasciculations
fatigue
foot
ice
insertion
love
motorneurondisease
mri
muscle
muscles
neurologist
neurology
new member
night
onset
problems
professor
reading
second opinion
stress
swallowing
symptoms
tests
thumb
tongue
weakness
work
Wow, .. Its soo hard to believe that 1 year ago today our lives were forever changed.
I can still remember that day like it just happened.
Going into that office, searching for answers, wanting to get help for Jason. I can still remember the colors of that room, how small that room felt, even...
als
angry
back
brain
breathing
conversation
cough assist
crying
cure
diagnosis
driving
family
father
fingers
friend
hearing
heart
immediately
life
lou gehrig's disease
love
motorneurondisease
nose
progression
suction
symptoms
test
tongue
travel
wanted
wrists
wrong
Hi everyone,
Longtime lurker, first time poster :-)
My father was diagnosed with motor neuron disease in 2009. He's now 35, has very limited control of his body including his neck. He has problems with breathing [he's forced vital capacity is under 50%]. He can still eat and talk though. He...
My father was born July 7th 1947 and died Febuary ninth 2011. Today, Febuary 21st 2011, we gather here at his funeral to say goodbye.
Let me present to you the programme: First, I will say a couple of things. We will sing a psalm. We will hear the Prelude to Bach’s Air — played by the orchestra...
anxiety
back
bedridden
death
diagnosed
disability
early
electric wheelchair
family
father
fingers
goodbye
hope
hours
idiot
information
life
lift
motorneurondisease
movement
mucus
muscles
night
pneumonia
problems
scared
sleep
speech
support
symptoms
tongue
umn
voice
wanted
wheelchair
My father was born July 7th 1947 and died Febuary ninth 2011. Today, Febuary 21st 2011, we gather here at his funeral to say goodbye.
Let me present to you the programme: First, I will say a couple of things. We will sing a psalm. We will hear the Prelude to Bach’s Air — played by the orchestra...
anxiety
back
bedridden
death
diagnosed
disability
early
electric wheelchair
father
fingers
goodbye
hours
idiot
information
life
lift
motorneurondisease
movement
mucus
muscles
night
pneumonia
problems
scared
sleep
speech
support
symptoms
umn
voice
wanted
wheelchair
Hi,
I've been lurking for some time, and set up an account last month. Though I'd hoped to be able to leave this forum as a scary side note in my life, as of this morning, that's unfortunately not an option for me. :sad:
Backing up a bit: last summer, I found myself unable to clip my nails...
I'm a new member with a husband who, after 12 years of confusing symptoms and visits to doctors all over the country, was finally diagnosed in 2009 by the NIH as having frontotemporal dementia (FTD) with ALS-type motor neuron disease.
Every day brings a new problem and I appreciate finding a...
Since 1997 my husband (now 70 yrs. old) battled a series of strange symptoms which weren't definitively diagnosed until he became a patient in the Undiagnosed Diseases program at the NIH in Nov. 2009. The diagnosis is frontotemporal dementia with motor neuron disease closely related to ALS...
als
balance
bipap
caregiver
dementia
diagnosed
diagnosis
early
early symptoms
financial
food
ftd
help!
medical
motorneurondisease
muscle
muscle weakness
neck brace
nih
problems
questions
sensitivity
sole caregiver
support
symptoms
undiagnosed
weakness
weight loss