I had my PEG inserted on Thursday morning and came home from the hospital the next day. That 30 hour stay taught me some important things and made me really wonder about and rethink my approach to my ALS.
First of all, no ALS patient should ever be in a hospital alone. We're simply too...
Greetings. Since I’ve benefitted from reading through these forums for some time now I thought I should introduce myself and try to make some contributions of my own over time. I’m a retired academic librarian and 69 year old husband (our 47th wedding anniversary is next week) and was diagnosed...
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I'm obsessed with fiber arts and have been learning how to dye yarn, fabric, and wool for spinning into yarn. Not long after my husband was diagnosed with ALS we met with a contractor who specializes in modifications for accessibility and does a lot of work for the local ALS community. During a...
Hi all,
I've posted a few of my concerns about my Dad, and I thank you all for reading and responding.
This new issue is quite awful. My dad was diagnosed with ALS in August 2014. He seemed to have "a light case" at that time, but has since developed quite a bit of difficulty breathing. He...
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My husband is newly diagnosed and right now has pretty good mobility. Is this a good time to discuss what room we'll eventually use for him and his equipment, what modifications we should get started on, what type of bed and mattress will be most comfortable? How can I know whether our...
Hello, my name is Kristy. I am interested in learning more about ALS. I am a Occupational Therapy student and doing a paper on ALS. I am wondering about what type of adaptive equipment you may use or any modifications you made to help make you or your family members more functional. Thank...
Hi. Can anyone share what they have paid (or the cost to insurance, if appropriate) for a consultation on how a home may need to modified to accommodate wheelchair, etc.? We have a personal friend who has offered to do this consultation for our family and we want to compensate her in some way...
This is my first post so I am sure by the end it could have many titles. My husband was diagnosed 10 months ago and until the last week things have been a slow decline almost to the point I thought they must be wrong with the diagnosis. We have had to make few modifications to our home but I...
Got approved for a VA Special Adaptive Housing grant. So looking forward, what will I need or better put, what will my wife need to make this manageable? Don't want to mess up the house too much, my wife has to live here after I'm gone and I don't want her to have to live in a "Handicapped...
Hi,
I’m back after my apps. with a few neurologists, last week of October.
The results are:
-First EMG came back clean but NCV for legs showed a week nerves activity and carpal tunnel for both wrists.
-Second EMG (performed by a very god, respected doctor) report is: NCV good, right arm muscles...