First post - does anyone have vacation ideas? Our family has always done beach vacations. My wife is looking into a cruise. I'm concerned with her lack of mobility and difficulty eating, it could be rubbing it in her face. Isn't one of the main attractions of a cruise all of the food? I was...
Back in 2014, I experienced muscle twitching in my left eyelid. Hell, looked it up thought it was stress idk. It rarely happened in my limbs. It soon over time moved to my facial muscles cheek, mouth, lower eyelid, temple, neck you name it. Not constant but definitely annoying. (It's barely...
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Are there any cases of ALS that you guys know of that have been fatal within seven months of onset of symptoms?
My mother was diagnosed with ALS formally on Monday, after initially having a diagnosis of multifocal motor neuropathy in early October. Her serious symptoms started in late August...
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So last week at the va, steve told many different providers different things. For example, when asked about his ability to eat regular food, coughing, choking etc he claimed no issues to many issues. They kept asking him because he is having issues on their observations.
When asked how he...
Hi Everyone,
Although I have visited this forum from time to time, this is actually my first posting but I hope the information that we want to share will also be of help to other PALS and CALS out there:
But first I thought I would start off by giving you some background on our story so you...
Good morning all. This is my first post. Thank you in advance for any help you all can give me. I feel like this site is the only place I can get some true help without strings attached. My very active, healthy mother was diagnosed with ALS in June of 2015. She is now in a nursing home (in SC)...
Over the last two years I started having what at first was generalized symptoms such as getting muscle cramps and started primarily in my right leg, but gradually over time spread to my left leg and occasionally I would get a cramp in my abdominal area, around the area of my rotator cuff area of...
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Hi I am 40 years old male with many strange symptoms last 5 months since September.
All started with fasciculations and pain in my legs mostly in calfs and sole and a burning sensation (feeling) at same areas also a feeling of tightness and vibrating under the skin.
Also in my left hand I have...
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As I have posted before, I bought the carcass of a very used Magic Mobility/Innovations In Motion X4 wheelchair.
It is an old 4 wheel drive wheelchair with ATV tires that I thought would be fun for my friend and I to rehabilitate and to use on some of my adventures. In particular, I have been...
We recently had a our first visit with my care team, and it really helped us. It is so nice to have a plan and a place to ask real questions and get real answers. I think it has restored ourbhope strength and courage after a long and stressful 3.5 years. My attitude has completely changed.
I...