mobility

  1. KimT

    Vans - New or Used

    I've been shopping vans. Various people drive me around so I want something 2014 or later and I need navigation. I've pretty much narrowed it down to the Toyota Sienna with the VMi automatic, in floor. Fred is 6'4" and I'm a Honda or Toyota gal. I've been working with Mobility Works and new...
  2. A

    Over Heating, legs/feet swelling.

    Hi PALS, I'm posting for my Father. He was diagnosed in Nov '15 at the age of 55 and has advanced very rapidly. His mobility is very compromised with little to no control over his left leg and losing motion in his right. He can still walk but it is very painful. To the point: He sits in a...
  3. F

    Happy New Year, All!!

    Nope, I didn't stay up to see lighted balls, marshmallow chicks, pickles or sundry other things descend at midnight... By then I was engaged in checking my eyelids for light leaks ... :lol: However, now that I have everything in place for our first Eucharist of 2017, I did want to pop in...
  4. T

    Bulbar question

    Sorry for bothering you again but I'm extremely worried again. My breathing issues continue and Yesterday for some reason i became obssessed with my swallowing. I noticed that if i try to swallow saliva a few times I will get to a point I can't do it, maybe that's because swallowing only works...
  5. KimT

    Ordering Wheelchair

    The guy from Mobility Works called tonight. After my PT eval. and his measurements, he informed me that I'd be getting a Permobile M-300. He said I had to pay for the lift function up front and then try to get reimbursed from Medicare. He didn't order a ROHO seat and I told him I needed one...
  6. C

    24 and Terrified

    I've flirted with the idea of making an account for weeks now, I’ve been unwilling to feed into my own mounting paranoia, and until now I’ve been avoiding looking into the symptoms at all, but I’ve also found myself in need of community and the presence of those who can help me understand what...
  7. KimT

    EZ Lite Cruiser?

    Does anyone have one? I can't walk safely and am not sure how much is ALS and how much is badly sprained ankle. Anyway I'm ready to order this to use in the condo and outdoors. Will talk to Clinic about PWC in December but I don't have a van and am hoping I have some mobility time left in me...
  8. K

    What if he refuses a PEG?

    Mike has refused a PEG or. TRACHEOTOMY. What will that do to his timeline? He was diagnosed in March, he has lost 55 lbs, he is wheelchair bound, and has little mobility left.
  9. swalker

    Just returned from Yellowstone

    We just returned from another awesome trip to Yellowstone. The weather was challenging, with rain and snow for most of the trip. We had 4 good weather days in 4 weeks and another 4 so-so days. The rest were cold and wet. We saw rain, sleet, snow, and hail -- sometimes all at the same time...
  10. M

    I HATE ALS...(long post)

    This is my first post after reading over several threads and finally working up the courage to write my own. I am married with two beautiful children and I am the primary caregiver for my mom who was diagnosed with ALS last year. I am the oldest of 3 children and my mom does not have a husband...
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