mobility

  1. S

    Diagnosis now confusing

    Hi Just logged on for first time. My husband has had ALS symptoms in left hand/arm for on going 3 1/2 years. Showing now in right hand. EMG's prove to show in left and right arm and right leg. Resistence test from neurologist now shows weak in left ankle, but he does not feel this, still...
  2. thelma313

    Pain and ALS

    My dad is in horrible pain and I feel a little pissed off about this! I mean my poor dad has not been spared a single aspect of all that ALS wreaks on a person, but in addition to being immobile, unable to speak, unable to eat or breathe without his Bipap, he is also in terrible pain! He has...
  3. P

    PALS & caregiver at odds

    I've started this post a million times, but decided against a million and one. Finally, I decided to create a second anonymous screen name so this post wouldn't be searchable using the same screen name I use everywhere on the web, including here! My mother is the primary caregiver for my...
  4. W

    Please help, I'm so worried I have ALS

    Hi everyone, I am a 30 year old woman and I have been having a host of very scary symptoms. When I googled them they led me to ALS. I have been reading up on this illness and am incredibly petrified that I have it. I'm going to go through my symptoms for you guys, please let me know what you...
  5. L

    hospital bed?

    Is anyone here using a hospital bed? Dad needs to elevate his upper torso because of acid reflux, but we need to be cautious of his back (old injury). Of course, he's losing muscle tone due to the ALS, so mobility is also an issue. We've started to talk about hospital beds as a solution...
  6. S

    Is this ALS?

    My mother,63, was diagnosed with ALS 3 weeks ago. The Neurologist is not completely sure of this though, because she is having some odd symptoms that have happened so quickly. Started about 2 years ago she lost some weight, we all thought because whe no longes was excercising in her pool that...
  7. J

    Single handed Feeding Tube Apperatus

    My Father PBP and has had a Feeding tube for several months. He recently lost mobility in his left hand so I designed and patented an apperatus to allow him to continue to feed himself. I have several of them in production and taking orders. Follow the link to see a picture and more...
  8. L

    Refusing a feeding tube?

    I've talked to so many PALS with feeding tubes. Do many refuse them? I ask because my dad is not interested in getting a feeding tube. Granted, it's not something that anyone is thrilled to get, but I'm concerned that he may actually refuse this. Similarly, tell me all of the GOOD a feeding...
  9. L

    Facing this without a partner?

    I'm new and haven't been DX'd yet but expect to be soon. I was just wondering if there are others on here who are or were living alone without nearby family when first dealing with ALS. That is my situation and I am in complete overwhelm over how I'll handle things when I've lost my mobility...
  10. R

    I wonder...

    Please, could anyone answer these: I wonder if a person has ALS, is it possible that: 1) The most predominant symptom can be numbness and tingling sensation? (for about 13 months my limbs fall asleep very easily). My peripheral nerves are extremely sensitive (e.g. when I scratch my skin...
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