mnd/als

Hello Everyone- I thought I would come to give everyone an update since I have had a few appointments over the last week and haven’t posted in a while. Here it is- I saw my ENT, he seems very concerned. He said that the soreness I feel along the jaw line is probably tongue weakness. He...

Hello all! I'm new here and I'm in the process of being DXed. I want to thank you all for sharing so freely on here..for people new to the process, it brings great comfort as well as a wealth of knowledge. My appointment with the MND/ALS Center at the U of U is over a month away. I can't...

This is probably a stupid question, but I was reading on here and I am trying to figure out if MND and ALS are the same thing? If not , what is the difference? Also, I have another question to add to my previous post. I have muscle twitches all over my body at least several times per day. My...

Hi I'm new to this. We have familial MND in our family. 3 of my Dad's brothers and sisters died from MND/ALS so we know how bad it can be. I'm looking for any helpful or positive suggestions, anything at all. I'm mostly concerned for my Dad now who may have MND himself and is having tests in a...

Hi I'm new to this. We have familial MND in our family. 3 of my Dad's brothers and sisters died from MND/ALS so we know how bad it can be. I'm looking for any helpful or positive suggestions, anything at all. I'm mostly concerned for my Dad now who may have MND himself and is having tests in a...

Hi I'm new to this. We have familial MND in our family. 3 of my Dad's brothers and sisters died from MND/ALS so we know how bad it can be. I'm looking for any helpful or positive suggestions, anything at all. I'm mostly concerned for my Dad now who may have MND himself and is having tests in...

Hello everyone, new member and first time poster. I am currently undergoing testing for possible MND and have some questions for those of you with more experience and knowledge. I've done my research and don't believe that ALS is my problem but I will let the people who make the big bucks make...

Hello Am trying to get access to a NIPPV machine quickly ... Does anyone know where we can get to buy or rent one from urgently ? My mums hubby has MND/ALS and is in final stages - he was taken into hospital and ahs been rescusitated a few times, he has chosen to decline a Trachy tube and...

My wife is in her final year of medical studies so she knows a lot more than the average person about al lsorts of diseases but nowhere near as much as an experienced Dr. She had a Melanoma a month or so ago and it has been removed with no long term problems. She got very anxious about this...