mnd/als

  1. N

    Where to Now?

    Hello to everyone, My father, age 56, was recently diagnosed of MND. It all started April 2016 when we noticed my dad started dragging his right foot. He began to trip and fall more than ever in his life. He was extremely athletic all of his life and has worked from the early age of 7 until...
    • nightowl
    • Thread
    • age als athletic dad diagnosed diagnosis disability early family father foot hearing insurance life medicare mnd mnd/als problems symptoms treatment trip
    • Replies: 6
    • Forum: Newly diagnosed
  2. M

    Still concerned

    Hi there, I posted a few weeks back and got some responses to my initial concern about ALS/MND due to varied symptoms that I have experienced over past 7 months . Anyway I saw a Neurologist on 6th July and she done a full clinical examination of me and said that as far as she could see there...
    • Milloman
    • Thread
    • advice als ankle back breathing clinical concerned cramping cramps emg helpful hope mnd mnd/als muscle neurologist power sporadic symptoms tests twitching worried worries
    • Replies: 5
    • Forum: Could this be ALS?
  3. L

    ALS TDI and new AT-1501

    ALS TDI. AT-1501 is a new cure for MND/ALS but research is progressing slowly because there is no money. How is it possible? Can anyone explain to me what it is about? Regards, Lolita
  4. S

    Your instincts please (much appreciated).

    Hi and thank you for this forum. In my sheer panic days I was a regular poster ands always treated courteously and kindly -even the tough love I was given was correct and well intentioned.. I am still in limbo land. Diagnosed as we stand by an excellent UK mnd/als centre with bfs and...
    • Sidney
    • Thread
    • als als? back bfs breathing clinical denervation diagnosed emg foot foot drop hope love mnd mnd/als respiratory sad sleep symptoms weakness
    • Replies: 6
    • Forum: Could this be ALS?
  5. J

    Still Recruiting (Until Late August) - Psychological Flexibility in ALS Patients

    Researchers from the School of Behavioural, Cognitive and Social Sciences at the University of New England are investigating the role of psychological flexibility on understanding and acceptance of PEG tubes and non-invasive ventilation (using a BiPAP machine) in people with Motor Neurone...
  6. P

    MND or Brain Stroke

    Hi, My grand father is aged 73 years. He is fine till last year but slowly he lost the ability to smell, unable to sense the taste of food, uncontrolled laugh, tears coming up and slowly now he lost ability to speak / couldn't speak. We consulted a couple of neurologists where few of them told...
    • pulagamvenu
    • Thread
    • ability brain eating father food heart medical mnd mnd/als sleep stroke surgery swallowing symptoms taste
    • Replies: 2
    • Forum: Could this be ALS?
  7. A

    World first drug screening for MND

    It just was announced that Melbourne will have a world first MND/ALS drug screening lab! This means they can screen 1000 drugs in a week against actual MND sufferers stem cells & DNA. Have a read & google to find more articles: No Cookies | Herald Sun
  8. A

    New to site

    Received mnd/als dx in dec/2015. Began in spring 2015 during tennis and bike ridingwith left foot drop and gait and balance problems and fatigue. After seeing multiple docs, went to neurologist, had EMG kand was told I had mnd. At that point was using cross country sticks to help with balance...
    • Artist
    • Thread
    • als artist balance deanna emg fatigue fell foot foot drop l-serine mnd mnd/als muscle neurologist physical therapy problems ramp therapy walker weakness wheelchair
    • Replies: 7
    • Forum: People with ALS (PALS)
  9. A

    Pmx205

    MND Australia - Title Trials potentially to start 2019 in Australia & elsewhere on MND/ALS patients. Safety trials to start 2018 on healthy people to test toxicity.
  10. O

    Really really worried

    Morning Everyone, Firstly may l apologise in advance if my post is the same old worried story, when l know there are genuine real sufferers on here. l have read the stickie page but something is still eating up inside me:-( During the last week or so l have been suffering from pain in the...
    • omega
    • Thread
    • als anxiety back bulbar bulbar onset eating emg fingers health mnd mnd/als muscles neurologist night onset pain rant slurred speech speech story swallowing symptom symptoms test tests tongue twiching worried
    • Replies: 9
    • Forum: Could this be ALS?
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