mnd

https://newatlas.com/als-mnd-drug-clinical-trial-success/58026/?fbclid=IwAR1dOxTr-tJmf4NQrwUU1_KfxNulx8mxNHBqjXL_YU8hHcm1suw9r6aAnBE I have a hard time reconciling this with the fact that my free copper was high at diagnosis and I got it down to normal levels. My serum copper level was always...

I promised myself I wouldn't post here, but I caved to my stress over these symptoms. 42 year old Male. Initially I noticed a fine tremor in my left hand and feeling of internal tremor and starting having concerns over Parkinson's. In early November I started developing twitches in my legs...

Hi all, thank you for allowing me to join and be able to post here. I've been on this website a lot since October 2017 and I'll explain why. My husband, who is 31 years old began getting some twitching in his muscles in or around October 2017. He went to his GP for around two visits before the...

Hello everyone. I come back with an update about genetic test. They found CACNB4 gene mutations on my father with CACNB4 variants: NM_001330115,: exon6,: c.G518A,: p.R173Q, Chr2. That's a autosome dominant and I'm 75% able to carry a mutant. I'm currently waiting for my own genetic test results...

Marry Christmas Everyone! Sorry for the long post and bad English. To know my story you have to know a bit of my background. I was born in the Congo and lived there until age 7. I just turned 30 and things haven't been going to well personally to be honest. As you may or may not know, Congo...

First let me say this site and the folks who help are amazing. I hope I have that much empathy in charity in me. Question. I have had two conflicting ncs / emg’s - both ncs showed sensormotor poly neuropathy of axonal type. But here is the carrot. First emg showed increased insertion...

EMG results Hello: I went to my neurologist with the following symptoms: progressive spasticity, extending from left hand to left foot over the course of a year and a half. Lack of balance and clumsiness. No fasciculations or atrophy. My EMG results arrived today. I will be translating to...

Hi, first of all - thanks in advance for spending some of your precious your time reading my long story. I'm 25 and last 3 months of my life was the worst (so far) , fear-ridden time I have ever experienced. Everything started on the 1st of October with a constant, mild headache with painful...

My darling brave husband passed away last Wednesday at 13.22pm. He was so ill in hospital, but he proved himself to be a fighter for 30 days whilst suffering from bulbar mnd, pneumonia, sepsis, and a lower bowel perforation. I am so undoubtly proud of my husband. His name was Peter, he was 58...

Hi Guys, First, I will start by apologizing for my bad English I am a 31 year old male who has had neurological symptoms in the last 5 months. It started with fasiculations and tightness in my left calf muscle. Soon after the fasiculations became widespread. I have them everywhere on my body...