mnd

  1. worrieddaughter77

    Questions to doctors during second ALS clinic visit.

    My dad has been diagnosed with "MND likely ALS " a month ago in North Western University hospital in Chicago. In 4 days we are going to his second ALS clinic visit. During our last visit, i was too overwhelmed and unprepared to ask questions, but i want to make sure i am all of the important...
    • worrieddaughter77
    • Thread
    • als als clinic brain breathing clinic dad diagnosed drug trials genetic genetic testing mnd myasthenia gravis peg progression questions radicava rilutek stress supplements testing wes
    • Replies: 12
    • Forum: Current caregivers
  2. K

    EMG Done Today - Have some Questions

    Thank you all for your help. I will be very short as I understand and respect everyone's time. Yesterday I had NCV and EMG today and I don't have results yest in online portal. 2.Neurologist herself did the EMG and after test she said that everything is perfect. No fascinations and...
    • kris123456
    • Thread
    • als do i have als emg emg? fasciculations hip insertion mnd neurologist pain questions support test testing weakness
    • Replies: 9
    • Forum: Could this be ALS?
  3. D

    Anterior Horn Cell Disease

    Hey Everyone, Recently a family member of mine has been diagnosed with Anterior Horn Cell Disease caused by MND. They have been given a prognosis of two years. But I am having trouble trying to find out information about it, and contrary to what I have found on this forum it seems to be...
  4. S

    Moderate Dysphagia found in Swallow Study, plus tongue aches

    Hello all, thank you for your community. I have been seeking some form of diagnosis for a year or so now after beginning a variety of neuro type symptoms last Fall... which were initially numbness and tingling (I know, not ALS), which morphed into body wide twitches (worries began here)... which...
    • sjh5gg
    • Thread
    • ache age als back bfs bulbar bulbar als bulbar onset clinical confusing death diagnosis dysphagia early emg fatigue fingers mnd onset reflex research scared slurred speech speech swallow swallowing swallowing issues symptom symptoms tongue twitches worries
    • Replies: 7
    • Forum: Could this be ALS?
  5. M

    Symptoms

    Hello, read your notes and thank you all for this group. I would appreciate responses, I have been having back pain, no signs of damage on MRI, Dr recommended a CT angio as I have a history of blood clots, came back clean but referred me to pulmonologist. Pulm did a PFT which came back at 74%...
    • MoniqueM
    • Thread
    • als back emg mnd mri pain symptom symptoms tremor twitching work wrong
    • Replies: 16
    • Forum: Could this be ALS?
  6. S

    Very concerned

    Hey Everyone, I have been going some issues lately that I would like to get some experienced opinions on. I am a 34 yr old male with two little kids and I have been terrified that something is happening. 2 months ago it started with what I perceived was numbness, but after two months have...
    • Skywalker
    • Thread
    • als anxiety arm back bfs concerned cramping cramps emg immediately kids mnd mri muscle neurologist onset paralyzed shoulder symptoms tests thumb twitch twitches twitching wanted worried worry young
    • Replies: 12
    • Forum: Could this be ALS?
  7. S

    Hi. Yet another EMG. Could I ask some questions please?

    So today another EMG. Findings essentially the same as six months ago. Low level psw seen in lower limbs. Neurophysiologist said 'still think neuropathy'. I will see head Neuro in a week for another clinical. Going for me is 2 years of symptoms with fasiculations and mild denervation.Mild...
    • Sidney
    • Thread
    • als atrophy back clinical denervation emg mnd questions symptoms weakness
    • Replies: 13
    • Forum: Could this be ALS?
  8. A

    Nsw/au cals

    Hi, I was listening to a totally unrelated podcast yesterday which got me empowered to want to raise awareness in AU/NSW for MND. This morning the NSW govt. gave $2 mil (or more) to cancer research and 2 other diseases as well. My husband made a comment saying "thanks for leaving us out!"...
    • AKNate
    • Thread
    • awareness cals medical medicine mnd movement radicava research
    • Replies: 12
    • Forum: Current caregivers
  9. worrieddaughter77

    Does slow speech precedes slurred speech and disphagia and other bulbar symptoms?

    My dad was diagnosed with "definitely MND, probably ALS" with bulbar onset last week. As I learn more about the disease, I also look back to see if I remember when my dad's first symptoms started. It was 9 months ago that he started slurring some consonants for the first time. But it was...
  10. B

    Beating a dead horse or legitimate concern?

    Hello everyone! I realize the "I have twitching! HALP!" questions are Legion on here, and if my symptoms and situation aligned pretty closely with the typical BFS picture I wouldn't post. Unfortunately, however, from the info I've been able to gather my symptoms and situation are a bit out of...
    • btdyq5
    • Thread
    • arm atrophy bfs clinical early emg fasciculations fingers info lift mnd muscle neurologist questions reading shoulder stages symptoms testing twitches twitching weakness
    • Replies: 4
    • Forum: Could this be ALS?
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