mnd

This podcast is not directly related to ALS/MND, however it covers a problem we all have encountered in one way or another. Posting here in Research News, as this is where most of the stem cell, drug and treatment discussions happen and where potential treatments/research gets posted. An...

Hiya guys, New to this forum thought i would introduce myself. I have enjoyed reading all your helpful posts. I was having a nosey round but couldnt find an answer to my query specifically so while saying hello i thought i would ask here. So the very short version of a very long story.... i...

I'm still not sure if I want to be a member of this club...I've been hanging around this site reading the threads and trying to find a reason I shouldn't be here. I'm for sure in denial but I may need advice, friendship so ... just in case I wake up from denial, I thought I'd join. :shock: I am...

Hi – male aged 47, here my history is below, would be very grateful for some input. For just over 2 years (since Sept’15) I’ve had fasciculations – started suddenly in my calves one day. They have been constant there over the 2 years and have spread – I get them on my back and sometimes arms...

Dear all great people in here!! I posted here in march for getting advise on my Emg results. I am still in the limbo have had one more Emg since last. This was abnormal and showed spontanious activity but not enough to diagnose. The worries are my symptoms are getting Worse and I am so worn out...

Hi folks, Another one for you. I'm 34, male, from U.K. I have read the recommended posts before putting this up and just wanted to get thoughts. Like seemingly the majority of those who are diagnosed with ALS, I had an innocuous bout of 'foot drop' in my right foot about 7 weeks ago. I felt...

I thought this was worth a read. https://www.mnd.asn.au/your_stories/302-how-do-i-live-well-with-mnd.html

Please read my story from my previous posts. I am still not diagnosed with MND and my doctors are certain its not ALS as some of my symptoms improved. My condition is still a mystery and i still have some of the symptoms. I just wanted to thank all the wonderful people in this forum for putting...

I have had 2 EMGs both came back clear, 30 days apart, only symptoms before were fasiculations & an FVC of 84 which I was told was concerning by the pulmonologist, said it was more so my ability to get air to my small airways & the value of FEF25 While I feel good about my EMGs I am having...

Sorry, not sure if this is the right place, but I'm new and still being assessed. Just want to say hi to everyone and especially to all who have ALS/MND, or are caregivers, much love to you all and thank you for being so compassionate and caring. You all are heroes.