mistake

  1. E

    Here for an opinion

    First, I want to thank all the contributors to this forum especially PALS/CALS. I do recognize that your time is valuable. Yet, you devote so much time to helping others (a large percentage of people that don't have anything that remotely resembles ALS) which is truly remarkable. About 10...
  2. 7

    speed at which my symptoms “seem” to have onset

    Hi, I am new here and must say I respect those dealing with ALS....some of the toughest people on earth. I am not looking create an overblown post here, but I just got refered to a neuro and kinda looking for what to expect...reactions to my symptoms. My blood work has shown an elevated CPK...
  3. K

    Looking for advice

    hello everyone. I am 28 years old, I have had tingling and muscle twitching in the bottom of my left foot and left calf for over four months. I finally went to the DR. he did a neurological examine. (had me stand on my toes, heels, pushed on my legs, feet, up and down, squeezed fingers etc. He...
  4. M

    I'm sorry to ask... but I'm really scared.

    I'm really really really sorry to annoy you all, it's probably more the anxiety than me writing this but I'm really scared no matter how much I read the "That gives a percentage of 0.0001% or a 1 in million chance . . . and that's at best." I'm just unable to calm. I'm female, 31 (ok, i will...
  5. U

    Twitching & Abnormal EMG... Terrified...

    I’m posting here because I don’t know where else to go. I have read the stickies, and I am very much struggling after being told by a neurologist that my EMG was abnormal today. I’m a 32 year old mother of two beautiful boys (1 and 3 years old). Along with my husband, they are my whole world. I...
  6. D

    How many like myself have chosen not to even try to get the Radicava shots

    If I'm using the right words for that newest shots that came out last year 2017 that they give you to try to stop or slow down the progression of ALS. $150,000 a year or something. I didn't even pursue it or look into it carefully after the I got diagnosed with ALS in November 2017 at the Mayo...
  7. Kristina1

    well this is silly but...

    ...im probably not the only one whose done this. March 5th will be the one year anniversary since my diagnosis. I had a clinic visit today. I said to my doctor "it's been one year, and I'm still doing fairly well, are you sure it's ALS?" And then she told me yes, it's definitely ALS, and...
  8. NothingButLove

    From constipation to diarrhea - What should I do?

    In an attempt to get my wife off suppositories, I changed my wife’s diet and have gone from hard rock-like constipation to soupy diarrhea. I need to know where I go from here. Here’s the story… My wife got her feeding tube last year on September 22nd. After a couple of weeks on IsoSource...
  9. A

    Very scared about ALS

    Hello, my name is Andrei, 17 years old. I am from Romania, Bucharest. I am very scared about my symptoms. So, 6 months ago I felt a burning sensation in my right biceps. After 2 weeks, everything stopped. After a while (maybe 10 days of peace) I start having muscle twitches in my feet for 2-3...
  10. tripete

    Another Mistake...

    Friday I took an hour drive (each way) to Ikea with my family. We were out the whole day. I got home and went right to bed everything hurt and I was exhausted. Since then I have very little strength and I can't get enough air to talk hardly at all. What I can say is weak and with a lot of...
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