mistake

Hello, I'll preface this by saying that I've had an on-again off-again fear of ALS that began 7 years ago, when I first noticed diffuse muscle twitches across my body and made the mistake of consulting Dr. Google. At that time (7 years ago) I informed myself about the nature of ALS symptoms...

Good afternoon, I have a specific question which I'm hoping you can help me with. I've read many posts, etc. and sometimes they are "in line" and then sometimes you get a variation from what the mods and senior members post here so hopefully this will help me. First, I do understand that many...

First, I want to thank all the contributors to this forum especially PALS/CALS. I do recognize that your time is valuable. Yet, you devote so much time to helping others (a large percentage of people that don't have anything that remotely resembles ALS) which is truly remarkable. About 10...

Hi, I am new here and must say I respect those dealing with ALS....some of the toughest people on earth. I am not looking create an overblown post here, but I just got refered to a neuro and kinda looking for what to expect...reactions to my symptoms. My blood work has shown an elevated CPK...

hello everyone. I am 28 years old, I have had tingling and muscle twitching in the bottom of my left foot and left calf for over four months. I finally went to the DR. he did a neurological examine. (had me stand on my toes, heels, pushed on my legs, feet, up and down, squeezed fingers etc. He...

I'm really really really sorry to annoy you all, it's probably more the anxiety than me writing this but I'm really scared no matter how much I read the "That gives a percentage of 0.0001% or a 1 in million chance . . . and that's at best." I'm just unable to calm. I'm female, 31 (ok, i will...

I’m posting here because I don’t know where else to go. I have read the stickies, and I am very much struggling after being told by a neurologist that my EMG was abnormal today. I’m a 32 year old mother of two beautiful boys (1 and 3 years old). Along with my husband, they are my whole world. I...

If I'm using the right words for that newest shots that came out last year 2017 that they give you to try to stop or slow down the progression of ALS. $150,000 a year or something. I didn't even pursue it or look into it carefully after the I got diagnosed with ALS in November 2017 at the Mayo...

...im probably not the only one whose done this. March 5th will be the one year anniversary since my diagnosis. I had a clinic visit today. I said to my doctor "it's been one year, and I'm still doing fairly well, are you sure it's ALS?" And then she told me yes, it's definitely ALS, and...

In an attempt to get my wife off suppositories, I changed my wife’s diet and have gone from hard rock-like constipation to soupy diarrhea. I need to know where I go from here. Here’s the story… My wife got her feeding tube last year on September 22nd. After a couple of weeks on IsoSource...