misdiagnosis

  1. J

    Acute Onset and Rapid Progression of Symptoms

    Hello, First of all, thank you for those that are diligent to post and answer questions on this forum. It appears that many are very helpful. My thoughts are with those that have been diagnosed and those still searching for answers about their conditions. Secondly, I do have a few questions...
  2. S

    Diagnosis now confusing

    Hi Just logged on for first time. My husband has had ALS symptoms in left hand/arm for on going 3 1/2 years. Showing now in right hand. EMG's prove to show in left and right arm and right leg. Resistence test from neurologist now shows weak in left ankle, but he does not feel this, still...
  3. tag0620

    So..Who needs some AMAZING GOOD news for a change?!?

    It's official! We're getting surgery on Jim's thoracic herniated disc! It's taken almost 7 months of FIGHTING, but they believe that his als diagnosis WAS a MISDIAGNOSIS! His disc is rubbing on and moving his spinal cord and each movement causes what the surgeon was calling multiple mini...
  4. tag0620

    We're seeing a pattern..now if we can get dr's to listen...

    Aloha all! We're back from a week in Maui! A little disappointing in that the weather wasn't it's usually perfect self (a bit chilly due to trade wind gusts up to 50 mph which caused a great exfoliation on the beach lol, and two unappreciate teenagers...but that's another long story)...but...
  5. M

    Needed...opinions

    One of my best friends is in really bad shape and I want to share with you her story...I just want opinions...I realize that you are not doctors or such...just want your opinion of what we should do next! With Missie gaining muscle strength (as you will read)....I am afraid it might be a...
  6. R

    confusing,conflicting,multiple Dx,s

    let me start by saying hello ,ive spent time reading on this forum before i had the nerve to write, i shouldnt have waited as there are so many caring and down to earth people on this forum,thank you all fot what you are doing. well,i am a 55yr old male who has recently got an ALS Dx back...
  7. O

    Newbie

    Hi, Yesterday my husband and I went to Shands medical center, neurology department for second opion of ALS diagnosis. And yes, my husband has ALS and has probably had it for two and 1/2 years. The misdiagnosis was do to SCI (spinal cord injury). He has no use of his arms, a little movement in...
  8. C

    CIDP - Chronic Inflammatory Demyelinating Polyradiculoneuropathy

    I found this while i was doing a search this morning. I don`t know if its a qauck or not but it says that people with CIDP are misdiagnosis with ALS. CIDP is a treatable disease it also says you can get it from mold exposure which i was exposed to for over 3 years so i don`t know? also says that...
  9. L

    Mom diagnosed with ALS

    Hi! Hope I'm doing this right, it's my first time. My mom, 67 years old, was diagnosed with ALS in Dec. of 2002. Her legs are very weak and she falls alot but so far is still walking. I have noticed her words being heavy and slowed. And her hands are losing strength-dropping things and not...
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