misdiagnosis

  1. C

    Non ALS/MND symptoms - misdiagnosis?

    Hi everyone, I'm new to the forum but have some questions that some of you may be able to answer for me. My father is 64 years old was diagnosed in May last year with MND. He has deteriorated very quickly and since his initial diagnosis has not heard from his neurologist at all. To date he has...
    • Caroline32
    • Thread
    • als biopsy dad diagnosed diagnosis eye family father hearing hope misdiagnosis mnd muscle muscle biopsy muscles myasthenia gravis neurologist pain questions reading research symptoms wrong
    • Replies: 9
    • Forum: General discussion about ALS/MND
  2. K

    Hello! I'm New Here!

    Re: introducing myself Hi Jack, I'll introduce myself too. Something I haven't done. Good idea! My husband was diagnosed in May then again in June through a second opinion meeting in the ALS/MD Clinic in Pittsburgh, PA. We have been devastated! What helped us to this point...
    • KissJ
    • Thread
    • als balance clinic cure diagnosed diagnosis driving eating kids love misdiagnosis planning problems progression reading second opinion support vacation worry
    • Replies: 14
    • Forum: New members
  3. B

    It is what it is

    I rarely post on this forum but I can assure you that over the last 2 years and 2 months I have certainly viewed hundreds of times, looking for hope... waiting to see a post on a cure or reason for misdiagnosis. It was 2 years and 2 months ago that my beloved was diagnosed with ALS. It took me...
    • BNR1
    • Thread
    • als back cure diagnosed eyes heart hope life medical memorial misdiagnosis progression research voice
    • Replies: 3
    • Forum: In memory of
  4. M

    Newbie asking for help

    Hello ALS forum users. Yesterday my brother was diagnosed with ALS, a diagnosis that has left us in shock and heartbroken. In the matter of 6 months he's gone from normal to walking with a cane. His symptoms started as leg twitches and pain in his extremities. Eventually the pain traveled...
    • Malissa57
    • Thread
    • als als? brother diagnosed diagnosis family happiness hope immune information life love misdiagnosis newbie pain support symptoms twitches unknown
    • Replies: 17
    • Forum: General discussion about ALS/MND
  5. R

    misdiagnosed?

    My mom was diagnosed with ALS last week. We are all devastated with the diagnosis and going for a second opinion at the ALS center next month. Today I spoke with my mom on the phone and even though her speech is still alittle slurred and difficult, she told me she was not having difficulty...
    • rms000
    • Thread
    • als diagnosed diagnosis emg emg? misdiagnosis problem second opinion speech swallowing
    • Replies: 8
    • Forum: Current caregivers
  6. Tokahfang

    Conversion Disorder and other Functional Neuro Illnesses

    This description is based on research up to June 2009. Functional/somatoform neurological disorders are mental illnesses and adaptations that cause real physical symptoms, but without an addressable physical cause. The one I'm going to be talking about mostly is conversion, because I know it...
    • Tokahfang
    • Thread
    • advice als angry anxiety arm back bipolar bulbar clinical depression diagnosis disability drugs finances genetic hope hours life life is good medical medicine misdiagnosis mri neurologist neurology nurses person with als pls problem problems progression research sad support symptoms testing tests tongue treatment twitch unknown wheelchairs women worry wrong young
    • Replies: 9
    • Forum: Could this be ALS?
  7. NotALS!

    Cervicothoracic Intradural Arachnoid Cyst Misdiagnosed as Motor Neuron Disease

    An interesting ALS misdignosis article: Cervicothoracic Intradural Arachnoid Cyst Misdiagnosed as Motor Neuron Disease Case Reports in MedicineVolume 2010 (2010), Article ID 261657, 4 pagesdoi:10.1155/2010/261657Case Report Cervicothoracic Intradural Arachnoid Cyst Misdiagnosed as Motor Neuron...
    • NotALS!
    • Thread
    • abdominal als als symptoms arm atrophy bulbar chronic denervation clinic clinical death denervation depressed depression diagnosis early fasciculations finger foot improvement information media misdiagnosis mnd motor neuron disease mri muscles neck pain neurology onset pain possible als pressure progression stages supplement symptoms tongue treatments usa weakness work
    • Replies: 0
    • Forum: Stories of hope
  8. B

    just diagnosed with motor neuron disease

    It's not a full diagnosis yet, as I am getting bloodwork done on Monday and will have to wait for those results. But I'm really scared right now so I would appreciate any insight you all can give me. I'm in Buenos Aires, and my docs speak English, but I think they may use some terms...
    • buenosaires
    • Thread
    • acupuncture als symptoms back burning cramps dad depressed diagnosed diagnosis early emg family fingers hawking idiot ignore info medical misdiagnosis mnd mobility money motor neuron disease movement mri muscle muscles neck pain night pain problems progression ring finger scared stress symptoms tests thumb tongue tremor twitches vacation worried wrong young
    • Replies: 74
    • Forum: Could this be ALS?
  9. C

    Does anyone want to try something different?

    I was diagnosed with ALS over 15 years ago. I went through cat scans, MRI's, mylograms, countless nerve conduction tests, blood tests,and had tissue removed from my thigh that was sent to the University of the Carolina's, that came back positive for motor neuron disease. Since the neurologist...
    • CaptainGeorge Roux
    • Thread
    • als back carolina clinic diagnosed diagnosis drug trials family fda friend immune life medical misdiagnosis motor neuron disease mri neurologist possible cure swallowing symptoms tests tongue weakness work wrists young
    • Replies: 8
    • Forum: General discussion about ALS/MND
  10. Northern Dancer

    Have I been misdiagnosed with PLS?

    I had an EMG a month ago. My family doctor had referred me to a neurologist because she was concerned with some unexplained falls which resulted in fractures. I knew that I had become more clumsy (and I seemed to have less balance walking in the dark) but I attributed that to having shattered...
    • Northern Dancer
    • Thread
    • back balance clinic diagnose diagnosed diagnosis emg family lyme lyme disease misdiagnosis mri neurologist pls symptoms test wrong
    • Replies: 33
    • Forum: Primary lateral sclerosis
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