misdiagnosis

  1. Music67

    Anyone received ALS misdiagnosis of Upper Motor Neuron signs

    Has anyone here first received an ALS (mis)diagnosis of Upper Motor Neuron signs only to still have positive response to an Ivig?
  2. Music67

    Has anyone received an ALS Misdiagnosis of Upper Motor Neuron?

    Has anyone here first received an ALS (mis)diagnosis of Upper Motor Neuron signs only to still have positive response to an Ivig?
  3. S

    For Fellow Worriers... What Anxiety Feels Like

    Since my post here asking about Bulbar Onset, I've been cleared by my PCP and by a Neurologist. I'm still terrified of ALS, and I very likely shouldn't be. My neurologist explained that a lot of people who suffer from severe anxiety manifest symptoms very similar to ALS/MS/MND/Myopathy/Etc...
  4. G

    Possible Misdiagnosis?

    Hello there, I have just joined this forum, my father 71, has just recently been diagnosed with MND, Its absolutely devasting for my family and myself. I have a few questions regarding diagnosis and i am positive people within this forum would have the experience to answer them? My father has...
  5. F

    Could this be fALS?

    My father was recently diagnosed with ALS at age 55. There is no history in our family of but several members have died before the typical age of onset. 2 of his mom's sisters died of MS which I'm now wondering if that could have been a misdiagnosis. His dad died at 68, not from ALS or anything...
  6. S

    Common Misdiagnosis

    Ever since I joined this site in July, I've noticed there has been a decent amount of individuals (past and present) who were initially diagnosed with ulnar nerve entrapment or carpal tunnel syndrome, and then months later it was discovered that it was always ALS. I was wondering if there are...
  7. A

    Waiting for 2nd opinion... Scared... Please advise.

    I'm new to forums... I've read, but never posted. Here's my story... My mother started having slurred speech in February 2012. She saw her primary care who thought it might be her enlarged thyroid causing the problem. She was asked if she could live with it and my mom decided she could...
  8. J

    My Horror Story

    My big horror story. After seeing several muscular neurologists, I decided to get one more opinion. This time I researched the internet to find a person that had some clout in the ALS network. With help from the ALS organization and many hours I found a neurologist I thought could give me a...
  9. M

    Suspecting misdiagnosis after 10 years

    Hello Friends, I am Mahesh Thapa, 35, from Kathmandu, Nepal. I was diagnosed Motor Neuron Disease (ALS)on 2003. I have difficulty in walking, speaking (unclear & Nasal voice but I can communicate), gripping & having problems like: cramping, fasciculation on muscle & tongue. I can stand but need...
  10. V

    Thanks for reading

    Hello All- I’ve waited as long as possible before posting to these forums (I’ve been reading them for some time) for fear of somehow insulting/disrespecting the plight of those brave persons living with this disease with my (perhaps) unreasonable concerns. After reading this site on a fairly...
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