misdiagnosis

  1. M

    Several Issues, Need advice

    Hi. I am 37 to make who has developed a lot of twitching and muscle pain in the past few months. I herniated a disc in my lower back last December, so I have had lots of sciatic pain/leg and foot numbness and tingling from that. I developed severe anxiety and started having panic attacks this...
    • mnjwyman
    • Thread
    • advice als anxiety back bed brain burning clean emg cold early emg exercise fibromyalgia foot headaches hours issues misdiagnosis mnd mri muscle muscle pain night pain phlegm sleep symptoms twitch twitching voice weakness worry wrist
    • Replies: 26
    • Forum: Could this be ALS?
  2. E

    Dad's Symptoms after Parkinson's Misdiagnosis

    Hello, I am going to share with you my father's current symptoms. I am a bit worried about him and would like to know your opinions My dad was diagnosed with Parkinson's disease and treated with levodopa for 3 months. Since the drug was not very effective, they did a neural imagining test and...
    • Emanol
    • Thread
    • als balance bed clinical dad diagnosed emg fasciculations father foot ideas lyme lyme disease misdiagnosis muscles pain problems speech symptom symptoms test twitching weakness worried
    • Replies: 22
    • Forum: Could this be ALS?
  3. A

    Second Opinion Confirms ALS

    Hello everyone. I have been recently been diagnosed with ALS through a second opinion. Obviously things are very confusing right now and have yet to set in. I am still extremely hopeful that this is a misdiagnosis and will be seeking a third opinion. A little history about my journey to this...
    • Albert1976
    • Thread
    • advice als arm atrophy brain confusing diagnosed early emg exercise finger lift misdiagnosis mmn mri muscles neurologist onset pain person with als second opinion shoulder test tests twitching
    • Replies: 3
    • Forum: Newly diagnosed
  4. M

    Misdiagnosis possible? Anyone looked into Lyme Disease?

    Guys, I've been reading a TON of articles about how so many people have been misdiagnosed with ALS but actually had Lyme Disease! Does anyone have any experience with this? Does anyone in Ontario know where to get tested for it properly? Apparently 50% of people bitten by a tick don't even...
  5. M

    questioning MND diagnosis

    Hi new to the forum my husband has been diagnosed with mnd and its been a confusing sad frustrating time we are to return to the neuro brain mind centre in two weeks for the formal diagnosis. I would like to ask ; my husbsnds symptoms stated 12months ago in right hand weak grip very limited use...
  6. W

    Time to join the group

    I've been putting off posting this as long as I could, just holding on to any hope of a misdiagnosis but after my third clinic visit yesterday, it's time to completely accept the fact that I have ALS. I've been lurking on the forums since my original post on DIHALS in May when I first heard...
    • wshealey
    • Thread
    • als clinic dihals disability hope misdiagnosis neurologist pls possible als sad support trilogy
    • Replies: 14
    • Forum: Newly diagnosed
  7. Blondrea

    Is it Ever a Misdiagnosis?

    Hello. My partner was diagnosed about three weeks ago. He went to Social Security to inquire about disability (for the future, not yet). They told him that benefits will cease if it turns out to be a misdiagnosis, which is sometimes the case. I doubt they see many people diagnosed with ALS. Yet...
    • Blondrea
    • Thread
    • als diagnosed disability hope misdiagnosis social security
    • Replies: 19
    • Forum: Newly diagnosed
  8. S

    Aunt Passed Away

    I have a strong familial link on my mothers side to ALS/MND where several people have passed away from the disease. My Aunt(mothers sister) has recently passed away from Parkinsons (apparently) However,I suspect that this was a misdiagnosis as the disease from start to finish only lasted 2 years...
    • steve67
    • Thread
    • als familial family genetic genetic testing medical misdiagnosis mnd parkinsons testing
    • Replies: 2
    • Forum: Familial ALS (FALS)
  9. J

    Its been a long road. And here I am with some need of support.

    Hello all, My name is Joe. Firstly, I would like to say that my heart and all of my love goes out to you all. The strength that it takes to be apart of any disease, especially this one, is beyond all measure! Hmm I don't really know where to begin. I suppose I will start from the top of my...
    • jram303
    • Thread
    • ankle arm atrophy back clear emg? clinical drugs early eating emg exercise family fatigue foot free friend heart hope ice immediately medical misdiagnosis movement muscles onset parkinsons story support swelling therapy thumb twitch ultrasound wanted worried worry
    • Replies: 10
    • Forum: Could this be ALS?
  10. W

    The Stem Cell Cure to ALS

    Do you have Bulbar/ALS or Cervical Spondlyotic Myelopathy? Dear Bulbar ALS patients, friends and family. The most helpful thing you can do is purchase a saliva pump machine like dentists have for under $100 for the person suffering from bulbar ALS. My mom used her saliva machine very frequently...
    • Wjameslane
    • Thread
    • advice als arm brain bulbar bulbar als cell cure death early early symptoms family feeding feeding tube helpful medical misdiagnosis neurologist neurology research saliva stages stem cell stem cell research stem cells surgery symptoms tongue trial twitches twitching
    • Replies: 16
    • Forum: Research and trials
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