metallic

  1. S

    I would kindly like to know if this sounds lika ALS to you;

    2 months ago I had an episode of severe stress due to the acclaimed dangers of a vaccination i had just recieved. I am kind of a hypochondriac so i fall easily for these kind of things. Having that said, these are my symptoms; It started with severe headaches, parathesia in the left side of my...
  2. L

    Newcomer Question

    Hi Everyone, I am a new member and have been reading the forum for a few a weeks but this is my first post. First, I would like to say how impressed and humbled I am at the strength, humor and support that I have seen in your posts. I have been a witness to the devastation that ALS can bring...
  3. BarryG

    Star Follies: Attack on the Neurons

    Star Follies, Attack on the Neurons A long time ago in a galaxy far, far away It is a time of intense twitching in the Galactic Republic Many question how all of the undulations in the force can be controlled Will the dark side win out? Can the Rebel Alliance be put down by the Evil...
  4. L

    Awful Taste... Sleepless in VT

    Hi all, my grandmother is failing incredibly fast from ALS as diagnosed late this last winter. She is now on a feeding tube and likely soon to have a tracheotomy to help her breathe. She is almost completely immobile now, and needs help to do anything- in the last two months the decline has been...
  5. E

    metallic taste

    I have been an ALS patient for four years now on bipap 24/7 and have started experiencing an awful "metallic" taste and a burning sensation in my nose, lips, mouth, eyes and lungs. Has anyone else with a similar problem found anything that could help? thanks ellen
  6. M

    Clean EMGs/Clean Neuro Exams-ALS possible?

    Hi! I had posted my story before under different titles but the whole situation makes me still afraid. Maybe some of you could give me some additional advice or help as I am almost down with my nerves. Current situation: Ongoing bodywide twitching, constant sligtly increased cpk, feeling...
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