My understanding of Neudexta is that the dextromethorphan is what helps PBA. If dextromethorphan is the active ingredient in Neudexta, and quinidine is only there to slow the metabolism of the DM, shouldn't any sustained release form of DM be helpful? Quinidine interacts with other meds that can...
I have been reading a lot of the posts on this site for the past week and half and decided to finally post my own story.
I have been dealing with a lot of weird symptoms lately and decided to see a neurologist about it earlier this week who specializes in neuromuscular issues and has...
This was posted on another ALS Forum:
Animal Study Suggests ALS Motor Neuron Loss May be Delayed with Triheptanoin
September 20, 2016
Teresa Pais, PhDby Teresa Pais, PhD
Because of increasing evidence...
I just had my second quarterly visit with the Neuro since my diagnosis.
First off, physically I have nothing to complain about compared to a large number of people on these forums. I have lost fine motor skills, strength, and coordination in my left (non-dominant) hand only and a little...
I'm not sure about it and would like to know what you all think about it.
Here it is...
December 16, 2014
Dear ALS Fighters and Families:
There is an opportunity for us to expand WFND’S current therapy program for PALS (People with ALS) and to totally stop ALS progression. Although...
ice bucket challenge
Ayahuasca – Ethnobotanical medicine for potential treatment of ALS
By Daniel Gustafsson
In south and central america, the native people within many tribes living along the amazon river has a long historical tradition of making and consuming a natural medicine/brew called ayahuasca. It is...
Vitamin B12 is a nutrient from food we eat that helps keep the body's nerve and blood cells healthy. It also assists with making DNA in our cells. Vitamin B12 is an important nutrient to prevent anemia. Folate is a water soluble B vitamin that is found in food and helps create and maintain...
Some good news and some bad news.
The GOOD news is that my EMG only shows any LMN damage in my arms--which is very possibly caused by very bad fall two years ago. I also have low B-12--which the doctor thinks is accounting for all the other LMN signs. It's within normal ranges--but the...
My grandmother was just diagnosed with ALS two weeks ago. She's in her early 70s. Just before I left on a trip during the last week of April, her only sibling called and said he was in the hospital. He died only a few days later. They were never really close, but I think that the stress and...
symptoms of als
Hello everyone, as most of you know my problems have been mostly bulbar up until the last few months but I have been experiencing increasing arm weakness in the last month or so and an unusual symptom. When I go to do a feed I get ready with the syringe barrel in the peg tube and then when I go...