mestinon

  1. P

    Scared that I might have als

    My symptoms started with weakness in my left hand, in October of 2013. Then later that month I started getting twitches on my left side that continues 24/7. Whole left side is weak, like I've had a stroke,but ER visit with MRI of my head showed no evidence of a brain bleed. Since that I've...
  2. S

    Legitimate Concern

    Hello Everyone, I believe I joined this forum many years ago because I was worried that I had ALS back in 2007. I was blown off by a lot of physicians and I finally had a neuro locally that took me serious in 2008 and did a ton of testing. I thought I had bulbar symptoms for ALS because my...
  3. G

    Diagnoses with PBP 6/7/13

    Hi all- Its been a long journey...In December 2011 I had a crown redone for the third time on my back right upper molar. I noticed heaviness in that area of my mouth right after and started to slur my speech in the evening. My mid March the slurring was much more prominent and my colleague...
  4. skipper66

    Feeling very sad/hopeless

    My sister took my dad to see his ALS specialist for a check-up today. My dad has been extremely fatigued lately. So, I do research and more research trying to help him. So, I saw posts about the drug Mestinon and a guy goes on and on about it being a miracle drug for him on here. So, I get my...
  5. S

    Practicing Patience

    Good morning. I'm 48 and new to the forum. My fiance (God bless her loving heart and soul) has been on here awhile doing all the research on my condition at this point. I am in the diagnosis process of either MG or ALS. It started three years ago with just a nasal voice that has very slowly...
  6. hjlindley

    Mestinon

    All of us PALS know about the debilitating fatigue with this disease. When I was a clinic, Dr. thought this drug would be worth a try. It is normally used for Myesthinia Gravis, but had a low side effect profile and is cheap (generic). Well, IT WORKED, at least for me. Two days after I...
  7. P

    Has Your Doctor Considered Mestinon?

    I have no clue as to what percentage of the ALS population might benefit. But within a few months of diagnosis, my husband's neurologist (not from the ALS Clinic) prescribed Mestinon (the generic version), which is a drug for myasthenia gravis. He quoted a mentor of his as suggesting: why not...
  8. C

    anyone with knowledge of MG?

    Hi, I know this isn't exactly pertaining to ALS but I stumbled across this site and found more current and useful information regarding Myasthenia Gravis than any other and figured I'd get a more timely response as well. So, if anyone could help me it'd be very much appreciated. About 2 years...
  9. J

    Pointy tongue with crease in the middle and dents

    I have been weak for a year and a half. It hit me all over my body during a sad loss. Weak arms, legs tongue. Just lifting my chest to breathe was hard. No lectures here but I am too chicken to do the EMG so they diagnosed me with Myasthenia Gravis because I get better with rest and with 8...
  10. M

    More confusion

    Hi Just to add to the confusion about my diagnosis, I received a copy of a letter to my GP yesterday from my specialist. He diagnosed me with lower motor neurone disease but his letter states that "the situation is far from clear" as I have some suggestion of LMN dsiturbance both clinically...
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