mestinon

  1. L

    Peak cough flow variation in ALS

    Hi guys, I posted a few times already here about my mother who has a possible diagnosis of ALS, but seronegative Myasthenia Gravis is also still being considered, but it cannot explain the hyperreflexia of her legs. So they think ALS and MG or maybe cervical radiculopathy. She has atypical...
  2. G

    Dirty but inconclusive EMG, family history, now bulbar symptoms

    Hi, I started a discussion here last September, right after having a mildly (but widespread) dirty EMG. I'm sincerely grateful for the support and encouragement I received from the PALS and other people in this forum, they helped a lot to get me trough a very dark phase of my life. I'm checking...
  3. L

    Diagnosis changed and now uncertain again

    Dear PALS, I've been reading so many threads and posts since June 2017 and today I decided to post for the first time. First of all, thank you for all those informative posts and everyone that takes there time to answer. I will try to keep the post short, but it it's very complicated so please...
  4. L

    Bulbar ALS?

    Hi I am a 28 year old RN in Las Vegas. Unfortunately medicine here is not very advanced and we do not have very many specialist. I have been seeing a neurologist for over a month for only 3 blood test for myasthenia gravis and an RNS to be done. My symptoms are seeming to worsen. I’m guessing...
  5. M

    Probable Myasthenia is now looking more like probable ALS

    I have had MG symptoms for a year, bulbar onset, with much relief from Mestinon. I do not have an MG diagnosis because all the tests, including tensilon, were inconclusive. Tensilon only improved my respiratory VC by 7%. My resp VC is now down to 60% but my MIP and MEP are holding steady, not...
  6. S

    Should I get 2nd Opinion?

    Hello, Here is my history: 2013-2014: 2-3 times a year, sclera of left eye would turn red and eye would be very painful when focusing on objects within 2-3 feet (such as reading, looking at hands, etc.). Treated w/ antibiotic and then steroid eye drops by PCP with no success. 09/2014...
  7. M

    Emg question

    I am hoping some of you brilliant peeps can point me in the right direction. I have symptoms that are consistent with myasthenia gravis and PLS, weakness beginning in legs 7 years ago, now respiratory muscle weakness, swallowing/speaking issues, fasciculations (not tongue), only able to eat...
  8. A

    Hoping to gain some insight~

    Hello, I want to thank you all for taking the time to read my post. I've been reading the forum for a while now and have found myself getting more confused. I have read the stickies and realize we need to wait for all the proper testing for a diagnosis, but am hoping someone can make...
  9. S

    I thought I had ALS for two years

    After experiencing slurred speech, excess saliva, jaw tension and swallowing problems for several months I went to a neurologist who prescribed Mestinon for Myasthenias Gravas. It didn't work so she ordered blood work, did a rudimentary EMG, ruled it bulbar onset ALS and referred me to Johns...
  10. T

    It's not always ALS

    So I've been at this process trying to get a diagnosis for three years now. It's been a hard road. I am still in the Army and have been for 17 years. My disease process and diagnosis has literally been all over the place! I'm no faker or malingerer, quite the opposite. I was used to running five...
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