mentality

  1. T

    My mother's mental state... she is so cruel.

    My mother was diagnosed last year. The majority of her body has succumbed to ALS. She can still speak, move her left arm, and her neck. Over the past few weeks, her mental state has changed. She has always been someone who speaks her mind, and in some cases - should not - but rarely to...
  2. A

    I'm back....very scared...no help

    I posted 2 years ago. I will sum things up again. I need some support or advice. March 2011 -Nerve pain in feet and hands developed when pregnant -Had normal induced birth due to blood pressure rise -Nerve pain continued and only happened with motion January 2012 -Freaked out I had ALS or...
  3. L

    Pssst....Pass it on

    I just found out a dear friend, Sharise, has passed away from this dreaded disease. I wanted to share a little story about how we met. You will get the title of this thread by the end of the story. I was so sad about this and was going through this site trying to seek some comfort. And...
  4. L

    Your crap threshhold?

    I'm curious for Caregivers, how much abuse will you take from your PALS? Kind of touchy because with FTD and dementia involved, there certainly will be a range. But, extraordinary crap is what I mean.. My Story: Mine gets super cranky and *****y. However, she has always been this way to a...
  5. L

    Nervous for the Last Days

    I am so nervous for the last days. I believe we still have at least a year, barring some unforseen circumstance. But am nervous still. We are definately of the living with the disease mentality and not dying of it. We still do as much as the both of us have the energy for. But breathing...
  6. H

    I'm new to this....

    Hi. My name is Heather and my mom has bulbar ALS. She is 65 years old and was diagnosed last March. I am a married, stay at home mom of 3 children, ages 10, 9 and 15 months. My youngest son was born 2 months before we found out that my mom had ALS. I have wondered many times why God blessed us...
  7. BethU

    Wake-up Calls

    Well, it's rant 'n' rave time again. Have had a series of wake-up calls, and have finally realized that denial is not a good coping mechanism for long. Especially with ALS. My "I can manage" mentality came to a screeching halt about 3 weeks ago, my last trip to the ER, when my LightWriter...
  8. P

    Sad News

    We saw the pulmonologist today and he told us Dick probably has less than 6 months left. We are going on hospice. He has a very aggressive form of als. I am having such a hard time with all of this. I feel like I am living in an out of body existence. Dick wanted to have his gall stones...
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