mental health

I thought this page gives a lot of sensible advice ALS Mental Health Also this on quality of life Quality of Life with ALS

Hello all. I’ll start off by saying Happy New Year and I hope everyone has a joyful evening. I’m a new member to this forum but I’ve been reading post after post as a guest. I’m a 21 year old female who has been having worrisome (to me) symptoms. I’ll admit to everyone I am somewhat of a...

I am in need of honest opinions-and maybe a little tough love. First: I have so much respect for the folks battling this disease while also being willing to support and advise others. My gratitude goes out to you. Second: I read the sticky, and I realize I likely don't belong on this forum...

Firstly I want to thank you all in advance for taking the time and effort to read this post I know time and effort are so incredibly valuable to PALS/CALS. I have taken the time to read the sticky’s and understand that I fall into the lowest possible risk group. To make this short I have...

Hello everyone my name is Nikki I'm 23 years old. It all started about a month ago when I was driving home I noticed my forearm felt tired, didn't think much of it. Left it for a few days before I looked it up on google and it came up with ALS at the very top. I started freaking out. I went to...

Hello everybody, I hope you don't mind me writing on here, I didn't really know where to put it. This post is a lot different to my others. I would like to thank you all from the bottom of my heart. Secondly, I would like to apologise. I started getting symptoms nearly a year ago today-...

Hello everyone, My wife and I have used this forum as a place to gather information and try to prepare as best we could to help my wife's mother. Roughly a year ago she was diagnosed with ALS and it has been quite aggressive over the last 6 months. At the start, we had done everything we could...

Hi! Some update. Last update 😊 After 5 days in Istanbul hospital under survalience of member of Turkye MND-ALS doctor group( he was 65 years old proffesor who had a lot of Als patients) numerous tests 17 vials of blood, emg done by their best emg specialist, they found .... nothing ABSOLUTELLY...

Well with this account ban it or delete it do what you must. My name is not Franco and I have four accounts on this website all banned. Before I go on I never had OCD or health anxiety until August 2015 when I was 18 years old and went through all these diseases until I found this one.. I'm...

hello all, i have limb onset that has now progressed to where even a little walking is very tough. my voice is weakening and i am laughing and crying too much. i take herbal medicine for the crying. i also see a therapist once a week and am making a great effort at self-caring and fun projects...