Three weeks ago today My husband passed after struggling with ALS for 5 years. On the morning of his death he was talking (quielty) and still aware of his surrounding. That morning I called hospice to give me extra medicine so he could sleep better. He was up all the night before. That...
At Tillie's request, I'm starting this thread about my decompression vacation.
Had this trip planned and tickets bought before I last fiasco. So glad I did.
When checking in at home Brian is doing fine, his old self, like nothing happened. I did clear this trip with him before leaving and he...
We recognized the first anniversary of Kathy's death on December 20. On january 23, the anniversary of her memorial, my father was admitted to the ER with internal bleeding. It was harrowing, as ER admissions can be. He lost half his blood volume. It's possible he had a stroke at that time. My...
My husband's elder brother had been ill for awhile (cancer) but we had no idea he was near death. Apparently relatives had decided to spare us the death watch. So today my husband found out that his brother died this morning. His son was with him, and he was nearing 71. It was a jolt for sure...
How do we get through the memorial service and grieving process for my brother when his 18 year old daughter and his wife don't even want to hear the term ALS?
Hi everyone. My name is Sarah, and I am nineteen years old. The last time I posted on here was about three years ago. My dad was diagnosed with ALS in June 2012, now three years ago. I found out on July 15th, 2012. I found out because I accidentally found a bottle of Rilutek, and I googled what...
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Over Memorial Day weekend my kids and I all flew up to Maine to spread Lonny's Ashes. He was raised in a small town on the coast and considered that his home so I decided that would be a good place for him. I rented a house in the town he lived in and we had a lovely time walking around and...
Hi everyone and Happy Memorial Day.
As time goes on, it seems more questions come up.
My neurologist retired so I'm in between providers.
So, far, what has changed the most is my right hand/arm. It's getting harder
to turn the ignition key, can't hold the coffee pot really anything that...
anxiety
arm
bipap
choking
cough assist
crying
cure
decline
depression
fear
feeding
feeding tube
finger
love
memorial
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nutrition
questions
saliva
suction
swallowing
test
tests
thumb
travel
worries
First off, Happy Memorial Day! A HUGE thanks to those who have paid the ultimate sacrifice for our country!
Let me preface by admitting that I have discovered that I am a huge hypochondriac.
I was sick with a upper respiratory spell for a few weeks. Sore throat, terrible coughing, etc...All...
anxiety
arm
back
brain
caffeine
cold
coughing
emg
feeling weak
finger
heart
hours
immediately
lead
medical
meds
memorial
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muscle
neurologist
night
questions
respiratory
shoulder
sleep
slurring words
speech
symptoms
testing
tests
tongue
twitching
weakness
work
worried
wrong
We would like to remember members of the forum in proper fashion by having loved ones, or friends, post a photo and details of the individual being remembered on our Memorial Wall.
If permissions is required, or a photo can't be found; let me know and I'll reach out to the contact information...