meds

  1. F

    Worried

    Hello everyone, I decided to post here after days of anxiety and depression. I am a 24 year old female. My symptoms started 2 and 1/2 weeks ago when both of my hands cramped. They kept cramping no matter what I did. I then felt sudden weakness. I went to the emergency where they told me to go...
  2. scaredwifetx

    Steve's flying free

    I have shared so much here over the years that I feel that this part of journey should be shared here before anyone or anywhere else. I hope that this helps a CAL somewhere. Steve was very anxious last night and today about the mask coming off and his breathing. He was fighting the meds meant...
  3. S

    Scared & Anxious

    Hi everyone, Am a 27y woman. It all began in June this year, when I was under a lot of stress due to lack of sleep and travel. I was tired most of the time, My left thumb started aching for unknown reasons and almost at the same time, I had some kind of un easy feeling in my left eye...
  4. N

    Robinul/Glycopyrrolate Thoughts

    Hi all, I am not a Dr. and I don’t play one on TV. I’m just a CALS who pays very close attention to what meds my PALS is on and how they affect him. I want to relate something I’ve learned so that you may be aware of a possible side effect of this medication. Brian has been on Robinul for...
  5. KimT

    Aciphex no longer available

    I've been taking Aciphex for 20 years. About five years ago, none of the insurance companies would pay for it and I started buying it for cash in Canada through their wonderful online pharmacy. The pharmacists there were wonderful and send me e-mail reminders when my prescription was due...
  6. BlsdMama

    Glycine receptor antibody? Swallowing fluctuations?

    Anyone else been tested or positive? Curious. I'm positive and Mayo thought certainly a more rare variant of Stiff Person. However, thus far, have not responded to meds. My MND doc at our university thinks PLS. Mayo admitted this week that maybe MND is what it is afterall. But first we try...
  7. S

    End Stages

    Hello, My mom is in the end stages of ALS. We had in-home hospice for a week when we decided together to go to the in-patient facility so she could be more comfortable as the meds at home were not doing enough. We’ve been here almost a week now and she had been more comfortable but now I am...
  8. R

    Back on here after a long time

    Hi All, My last post on here was almost 2 years ago, about the time i was having my 4th EMG, which came out clear of any serious issues, i wont lie and say everything went back to normal after that, i did have my bouts of weakness, twitching, new symptoms etc etc but since September 2017 ive...
  9. J

    New Diagnosis

    New friends, My name is Jessi and my mother in law, Eileen, was just diagnosed with ALS about 3 weeks ago. She is a 2 time breast cancer survivor so they are unsure of whether or not her ALS is related to the radiation she underwent as a part of her cancer treatment or not. She lost total use...
  10. R

    Please help. Very scared

    Hi my names randy, im a 19 year old male with no family history of als ..ive been extremely worried as of lately because i feel i might have als/mnd...it started about four years ago i had terrible anxiety and started feeling tingling and numbness in my left arm and went to my PCP and was...
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