First off, I want to say that I am a General Internal Medicine physician and, while I have cared for many ALS patients suffering through the later stages of ALS, I know relatively little about the various ways that the earliest manifestations of ALS can present themselves (I know the classic...
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Hi,
This is my first post - have been lurking for some time reading all the great advice. Thank you all for holding this party and allowing others of us to join.
My husband's ALS is fairly well progressed - he started with left arm weakness and slurred speech, and at this point has lost the...
Went for monthly visit to the Doctor yesterday, he wants me to quit working. Not because I’m physically unable to perform at work or there is a safety issue, it is because it interferes with my medicine schedule. Granted he has a point, it I take the amount of Baclofen and Tizenidine on the...
My symptoms started with weakness in my left hand, in October of 2013. Then later that month I started getting twitches on my left side that continues 24/7. Whole left side is weak, like I've had a stroke,but ER visit with MRI of my head showed no evidence of a brain bleed. Since that I've...
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My dad has been sick for months and since we live on a secluded island only accessible by ferry or plane the world of medicine here is severely lacking. Not one of the doctors he saw here were even interested in finding out what was wrong when all the basic tests came back fine, so he went to...
February marks four years since being diagnosed with ALS. Came on this website January 2011. Been taken to the wood shed several times, plus being called dumb, stupid, and cruel. Told there is nothing you can do to slow progression, you can only play the cards dealt. Changed game to five card...
Hello, everyone. My mom's discomfort level has recently increased rapidly and drastically. We are reaching the very end of this battle and comfort is priority above all else. Hospice has provided liquid morphine drops that they say help her breathing (maybe by making her more calm?) and also...
Hi all. My mother, age 72, was diagnosed with ALS about a year ago, after several years of tests that showed nothing. It started with a knee replacement surgery that she had. About six-months post-op, her right foot started dropping, and she could not control it. Her doctors initially thought...
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