medicare

  1. K

    Scared / Depressed / Worried

    My husband has ALS. He started developing symptoms Thanksgiving Day 2009. Currently, his speech is affected and he has cognitive thinking problems. It has not progressed to his lower body yet (which I am grateful). The man I married was a "man's man", loved to get involved, outgoing and...
  2. A

    Family members should know

    Been here for a full 3 months. Thought there would be more quiet time to spend with Mom. I find myself being the sibling dealing with Dr. and Medicare appointment/visits. Calling about resources, shopping, cleaning, cooking, bathing Mom, dealing with the ALS association - which have been so good...
  3. P

    Assisted living and DME

    Hi. I am a PALS, diagnosed 4 1/2 yrs ago. I have leg onset, but have managed to live on my own using a rollator, and having help with cooking, cleaning and laundry twice weekly. I am at the point now that I need more help and a power wheel chair. Since I have no primary caregiver, or family who...
  4. J

    First Clinic Appointment Qs

    Let me preface by saying I am beyond frusturated. My mom was diagnosed (finally) on 2/18/13. I was in shock and didn't really get all the info my dad was giving. So I called them yesterday. I knew the neuro had referred them somewhere... I assumed it would be the ALS clinic here in Dallas...
  5. Nikki J

    Medicare eligibility and work credits

    Hi all I do not have ALS but come from a FALS family I know to get Medicare you have to be receiving something from ss. Ssdi or ssi. If you are 62 and take early ss and get a diagnosis of Als can you then qualify for Medicare? Part two. Expiring work credits. If I earn 4 work credits in the...
  6. Nighthawk

    I suspect of a chemical that could've caused me ALS

    I had been reading this ALS forum over a whole year since I was diagnosed with this dreadful ALS disease by Dr. Rothstein at Johns Hopkins Hospital a year ago just based on the symptoms [Babinski, knees hiperreflexia, ankle clonus, bulbar symptoms such as drooling, slurred speech, atrophied...
  7. D

    Breathing Issues

    Wondering if anyone else has encounter this situation. Over the past month Dean gets very short of breath after walking to the bathroom etc. He is using a walker. I've taken him to the ER twice because it's lasted longer than 15 - 20 min. both times. The last trip to the ER he was on oxygen...
  8. D

    It's all new to me

    I was told by doctors and neurologists that I have bulbar palsy, restrictive bulbar palsy, als onset bulbar palsy and progressive bulbar palsy. I wish they could get together and call it one thing. Is there a difference? The neurologist that specializes in MND called it PBP so I guess I'll go...
  9. A

    Home Care for my mom !

    Hi again, right now i am in a bad situation, my mom has an HMO she has medicaid and medicare, i have to work, its just me and her in the household, does anyone know if medicaire or medicaid will cover for someone to stay with her untill i get home from work, i can not afford $1200.00 extra a...
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