medicare

Just got back from picking up my Rilutek and the cost has gone up again. Now $2,035 for one month supply of 60 tablets. So in the medicare gap my share of the price is $1,008. Is anyone incredulous about this increase. Last year it also increased from about $900 to $1,129 if I remember...

My husband has ALS. He started developing symptoms Thanksgiving Day 2009. Currently, his speech is affected and he has cognitive thinking problems. It has not progressed to his lower body yet (which I am grateful). The man I married was a "man's man", loved to get involved, outgoing and...

Been here for a full 3 months. Thought there would be more quiet time to spend with Mom. I find myself being the sibling dealing with Dr. and Medicare appointment/visits. Calling about resources, shopping, cleaning, cooking, bathing Mom, dealing with the ALS association - which have been so good...

Hi. I am a PALS, diagnosed 4 1/2 yrs ago. I have leg onset, but have managed to live on my own using a rollator, and having help with cooking, cleaning and laundry twice weekly. I am at the point now that I need more help and a power wheel chair. Since I have no primary caregiver, or family who...

Let me preface by saying I am beyond frusturated. My mom was diagnosed (finally) on 2/18/13. I was in shock and didn't really get all the info my dad was giving. So I called them yesterday. I knew the neuro had referred them somewhere... I assumed it would be the ALS clinic here in Dallas...

Hi all I do not have ALS but come from a FALS family I know to get Medicare you have to be receiving something from ss. Ssdi or ssi. If you are 62 and take early ss and get a diagnosis of Als can you then qualify for Medicare? Part two. Expiring work credits. If I earn 4 work credits in the...

I had been reading this ALS forum over a whole year since I was diagnosed with this dreadful ALS disease by Dr. Rothstein at Johns Hopkins Hospital a year ago just based on the symptoms [Babinski, knees hiperreflexia, ankle clonus, bulbar symptoms such as drooling, slurred speech, atrophied...

Wondering if anyone else has encounter this situation. Over the past month Dean gets very short of breath after walking to the bathroom etc. He is using a walker. I've taken him to the ER twice because it's lasted longer than 15 - 20 min. both times. The last trip to the ER he was on oxygen...

I was told by doctors and neurologists that I have bulbar palsy, restrictive bulbar palsy, als onset bulbar palsy and progressive bulbar palsy. I wish they could get together and call it one thing. Is there a difference? The neurologist that specializes in MND called it PBP so I guess I'll go...

Hi again, right now i am in a bad situation, my mom has an HMO she has medicaid and medicare, i have to work, its just me and her in the household, does anyone know if medicaire or medicaid will cover for someone to stay with her untill i get home from work, i can not afford $1200.00 extra a...