medical

My wife (PALS) and I are concerned that I as primary CALS although in good health may have a Medical or other emergency where I I cannot contact anyone. My wife does use her iPhone but is unable to speak clearly. I suspect there are iPhone Apps or necklace gadgets that can be set up to do this...

Hello all, First I want to thank you for the plethora of information I found in the *Please Read* posts. It answered many of my questions. I also found some helpful info reading other posts. I am a rationale 47 year old Registered Nurse and am working on my PhD in nursing so I don't want to...

I received a Permobil M300 loaner from my local ALS Society a few months ago. I've been having fun with getting out and about, especially now that the weather is nice. But one problem is that the ride is really bumpy. For example, when I go over sidewalk cracks it feels like I'm really hitting...

Could you help us understand a Dr's responsibility to a patient when a drug like radicava is approved for treatment. We don't know if my husband- who has slow progression at this time - should begin treatment. Thankfully -we have great medical insurance at this time- so finances aren't the...

I recently listened to two seminars sponsored in part by the Steve Gleason Foundation. The subject was Medicare-paid custodial care. The basics to qualify are: 1) a patient must be home bound. 2) must require professional medical care such as skilled nursing, speech therapy, or physical...

Rescue squad responded to 911 call last Monday and transported my wife to non-hospital emergency room. Kidney infection plus stone blocking ducks required another medical transport to hospital. Both transports covered by Medicare and med gap insurance. Immediate procedure in operating room...

Hi - I attended my GP/PCP recently because my left hand, in particular the back of the hand between the index finger and the largest finger, looks to have lost muscle/flesh and has a prominent indent, could i have thoughts on this please from the attached photos, i.e. does it look like wasting...

My fiance' was diagnosed one week ago today! UGH! I am reading like crazy and realize I will have a medical degree soon! I sure need one to understand everything! Its difficult when what works for one doesn't work for another. How do we know what is right? When pALS are losing muscle how is...

I need support and I dont know who else to turn too. I realize we all have our path we need to walk alone and I know you all have been diagnosed with ALS but I really dont know who else to turn to in this time as no one understands as they only see me as a person who is not dying at the moment...

Hi everyone, I'm very grateful to reach out to the resources on this forum. I've read through the most read posts and have good cause for concern. I'm not sure what information to give you, I believe the most important is the EMG results. My first EMG in October showed extensive motor neuron...