medical

  1. J

    Confused, looking for clarity and perspective

    Hello everyone, I Am brand new to this forum but I would like to take a minute to say thank you all so much for what you are doing to provide support for PALS, CALS and people like myself who are seeking knowledge and peace of mind. I cannot say that I understand all that you're going through...
  2. chally

    Hospital stay

    Back home after three days in VA hospital Turns out I have a bleeding ulcer , not sure what brought it on had it back last December also. Dr said to acidic in stomach and probably stress Hospital stay was fair to good. Many medical staff do not have experience with als patients so a lot...
  3. A

    Update after Neuro visit

    Just wanted to check in. I had my follow up appointment with my neuromuscular specialist at OSU on Wednesday of last week. It was a completely different experience than I had the last time. I didn’t see the medical student, only my doctor, which I think made a huge difference. He actually...
  4. lgelb

    Medicare Advantage changes

    Since Medicare open enrollment is happening through December 7, just a quick note on some 2019 changes that could affect your decisions. It is always worth looking at what you have vs. the competition every year. Not all counties have MA plans available if you are <65 or at all, but many do...
  5. C

    Seek out a medical professional if you're scared

    Hi all, I just wanted to share a recent journey about my ALS scare and how the best thing to do is seek out a medical professional right away if your concerned. I feel like my story will resonate with others here lurking on this forum. Unfortunately, a 40-something neighbor of mine was...
  6. B

    Questions regarding life insurance

    Good morning. 32 years old with two young children and pregnant with my third. Undergoing testing for a neurological issue, with ALS as one clinical possibility although I have no been formally or even informally diagnosed yet. I have life insurance through my employer but no private policy. I...
  7. D

    ALS fears

    Hi guys, I’m really new to this thread and have read all the information before posting this. I’m really scared at the moment. A few days ago I noticed a sudden weakness in my left leg. This wasn’t gradual and as I say, very sudden. I can still walk properly, walk on my tip toes and I don’t...
  8. Kristina1

    requip/ropinirole

    Someone in one of the ALS facebook groups has started taking Requip, prescribed by his neuro off label to treat als, and has reported positive results. I'm curious if anyone on here is taking it, or if anyone has any more insight besides what has been published in brief online medical news...
  9. lgelb

    Public data on RCH4/NDX peptides

    Posting this public data separately from the current RCH4 thread as it may explain why controlled trials are doubtful as per today's posts, and provide some history. I'm not going to make this an open thread as there is enough rancor in the other RCH4 thread. For more links or clarification --...
  10. F

    Dad died

    Doubt anyone reads this things. Just wanted to mention my Dad passed. Came to this forum a few times for a help and it was much appreciated. His ALS moved so quickly we were unable to get him any of the benefits he deserved for being a veteran. I tried my best for my Dad. My heart goes out to...
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