medical

  1. C

    Extremely worried, only 19

    Hi all, I would like to first start off by saying that our thoughts and prayers are with you. In the past couple of months, I have been increasingly worried about my condition. I understand that I'm 19 and that ALS is extremely, extremely unlikely in my case, but my symptoms are starting to...
  2. BlsdMama

    Does it sound like ALS?

    Have had a spastic/rigid muscle above the knee for a while now. But now I'm having a problem with foot drop/drag - about two months. Have tripped and actually fallen twice, but most of the time it just causes me to stumble. Went to family doctor - no noted issues, referred to neuro. Took a...
  3. B

    Triheptanoin

    This was posted on another ALS Forum: ------------------------------------------------------------------------------------------ Animal Study Suggests ALS Motor Neuron Loss May be Delayed with Triheptanoin September 20, 2016 Teresa Pais, PhDby Teresa Pais, PhD Because of increasing evidence...
  4. S

    insurance question

    Not sure if anyone can answer this but I thought I would try. We currently have private insurance through my employment and medicare is my husband's secondary insurance. We have the option of dropping our private coverage for him and making medicare primary. We would also purchase supplemental...
  5. A

    A very strange question

    Hello Everyone, I'm new to this forum and I have a very strange question for patients with ALS. Thinking back to before your diagnosis, did you have any type of survey or medical procedure that required any type of anesthesia? If so, approximately how long before your ALS diagnosis did your...
  6. J

    Finding good nursing home in San Diego

    My sister-in-law's doctor just prescribed hospice care and said she needs care around the clock. We have home care coming in to her apartment twice a day but need to get her into a nursing home right away. Because she has a feeding tube, a nursing home is the only option, sadly. Does anyone...
  7. G

    Everything pointing to ALS

    Hi, I am not a worrier of individual symptoms so only posting because everything has built up so significantly and everything pointing to ALS. My biggest concern is the continuous rapid progression. I am 38 years old and based in Norway. Going on 10 months now with progressive symptoms...
  8. tripete

    2 Years ago - The End of Days

    Today marks the second anniversary of my first ALS diagnosis. We lived in Northeast Georgia at the time and had traveled home to Pennsylvania for the long Thanksgiving weekend. On Sunday of that weekend we drone form Pennsylvania down to see Dr. Pulley in Jacksonville, Florida for our Monday...
  9. B

    Medical expert witness on ALS?

    Does anyone here know of an ALS specialist neurologist who works as an expert witness? It did not matter where they are. I'm also interested in learning of any lawsuits that claim certain events or exposures caused/triggered ALS. Even if they were not successful, I would like to know if any such...
  10. KimT

    Bathroom remodel

    Hello Everyone, I need my bathroom sooner that I thought. I'm uploading pictures of the bathroom I'm having done. Is there a way to modify it so it is safe and functional without knocking out all the tile. I ask because I'm getting my room set up and all my medical equipment is located...
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