1. Nikki J

    New lab research Potentially good news for c9

    The ALS Association
  2. V

    Phase II Amylyx Trial at MGH

    The ALS Association Amylyx is a combination of sodium phenylbutyrate (PB) and tauroursodeoxycholic acid (TUDCA). I know many, including my dad have been taking TUDCA by itself as as a supplement.
  3. G

    DynaVox Vmax with EyeMax $750/OBO

    HI friends ~ I'm a Quality Life Coach with one of NY states largest agencies supporting those with developmental and physical disabilities. Recently a gentleman whom I have been coaching who has CP received some regional media attention regarding his pursuit of a lifelong dream ~ which...
  4. D

    Masitinib phase 3 !

    PARIS, April 4, 2016 -- AB Science Announces Positive Interim Results from Phase 3 Trial of Masitinib in Amyotrophic Lateral Sclerosis (ALS) (also known as Lou Gehrig's disease) Company to Host Webcast on Masitinib in ALS in the Coming Days AB Science SA (NYSE Euronext - FR0010557264 - AB), a...
  5. B

    Fasciculations and abnormal EMG

    Hello everybody I've consulted a neurologist about the pain I was experienced in both hands and feet, had EMG and NCS done and it showed abnormalities of denervation and some latency in median and cubital nerve He put me on pregabaine, but then the twitching started, my big toes basically had a...
  6. N

    How to make phone communications without using hands and fingers

    ALS disease includes common symptoms such as muscle weakness throughout the entire body. When your fingers and hands get weaker then how can you communicate by phone? I cannot pick up a handset and I cannot press the telephone keypad at all. I had to rely on my caregiver for each phone...
  7. Nikki J

    Excellent review article on C9

    Well worth reading if you are C9 The Spectrum of C9orf72-mediated Neurodegeneration and Amyotrophic Lateral Sclerosis
  8. G

    Als symptoms

    Hi I am 40 years old male with many strange symptoms last 5 months since September. All started with fasciculations and pain in my legs mostly in calfs and sole and a burning sensation (feeling) at same areas also a feeling of tightness and vibrating under the skin. Also in my left hand I have...
  9. J

    Symptoms continue

    I have posted in past and left. So I promise just a review and question. January: trouble with "fuzzy legs" and feeling of left leg wanting to give out. Emg/NCS: study normal, EMG upper right arm suggestive of carpal tunnel +fib on median nerve, lower left leg EMG normal Twitching in left...
  10. H

    3 years of symptoms. Slow progressing?

    Hi there, Long time lurker….I tried avoiding ever posting in here, because I know how repetitive these posts must seem. And I hate to sound like an anxiety filled cry baby. But I think I’ve been pretty patient with my symptoms (going on 3 years) and I’m in another anxiety panic about them...