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The ALS Association

The ALS Association Amylyx is a combination of sodium phenylbutyrate (PB) and tauroursodeoxycholic acid (TUDCA). I know many, including my dad have been taking TUDCA by itself as as a supplement.

HI friends ~ I'm a Quality Life Coach with one of NY states largest agencies supporting those with developmental and physical disabilities. Recently a gentleman whom I have been coaching who has CP received some regional media attention regarding his pursuit of a lifelong dream ~ which...

PARIS, April 4, 2016 -- AB Science Announces Positive Interim Results from Phase 3 Trial of Masitinib in Amyotrophic Lateral Sclerosis (ALS) (also known as Lou Gehrig's disease) Company to Host Webcast on Masitinib in ALS in the Coming Days AB Science SA (NYSE Euronext - FR0010557264 - AB), a...

Hello everybody I've consulted a neurologist about the pain I was experienced in both hands and feet, had EMG and NCS done and it showed abnormalities of denervation and some latency in median and cubital nerve He put me on pregabaine, but then the twitching started, my big toes basically had a...

ALS disease includes common symptoms such as muscle weakness throughout the entire body. When your fingers and hands get weaker then how can you communicate by phone? I cannot pick up a handset and I cannot press the telephone keypad at all. I had to rely on my caregiver for each phone...

Well worth reading if you are C9 The Spectrum of C9orf72-mediated Neurodegeneration and Amyotrophic Lateral Sclerosis

Hi I am 40 years old male with many strange symptoms last 5 months since September. All started with fasciculations and pain in my legs mostly in calfs and sole and a burning sensation (feeling) at same areas also a feeling of tightness and vibrating under the skin. Also in my left hand I have...

I have posted in past and left. So I promise just a review and question. January: trouble with "fuzzy legs" and feeling of left leg wanting to give out. Emg/NCS: study normal, EMG upper right arm suggestive of carpal tunnel +fib on median nerve, lower left leg EMG normal Twitching in left...

Hi there, Long time lurker….I tried avoiding ever posting in here, because I know how repetitive these posts must seem. And I hate to sound like an anxiety filled cry baby. But I think I’ve been pretty patient with my symptoms (going on 3 years) and I’m in another anxiety panic about them...