meals

  1. Firefighter58

    What should be done

    Good morning friends, this weekend my wife is not home and my son is here for the weekend to administer my meds to me with my tube and syringe, and to cook the meals, that works out good because he is a diesel mechanic but always wanted to be a chef so he is a hell of a cook. My wife and her...
  2. Lkaibel

    It's The Small Things...

    I did some small things today that made me feel better. I moved the weights and bench from the middle of the basement that I had to look at every time I fed the cats (he does not do that anymore). He had not used them since November and today I realized it was paining me to see those All The...
  3. A

    Hospice

    I had posted earlier about denial among family members about my PALS ( 79 year old woman diagnosed in 2013 with ALS). I took her to the clinic yesterday. Her FVC is 36. She has decent strength in her hands and forearms; voice is strong; swallowing is worse. The neurologist recommended...
  4. S

    Need for Respite

    I have been experiencing weird interactions with my family, both for those that live here with the PALS and me (CALS), and outside family members. We are Christians, and it seems that no one understands that I need a break. It seems so odd. Thank God I only work once a week and I have a lot of...
  5. rose

    Another type holder for tube meals

    I know a large percentage of those with peg tubes on this forum have the dangler style, instead of a button, but, if you or your loved one does have a button, this "cup holder" has been helpful for me. Taking pills the easy way | Tube Chic
  6. S

    Our Terrible Story

    My wife has Bulbar ALS, diagnosed since Oct. 2016. Some background prior to her diagnosis is necessary to get context: My wife, myself, and our now 19 yo daughter moved from RI to FL to care for my 91 year old Dad in July 2013. We moved in with him. He was very demanding and...
  7. Firefighter58

    Improvement in eating

    Hi folks, just a note to bring you up to date, last night had a full meal for supper, shepherds pie, large bowl of ice cream and a glass of Pepsi. This morning a large bowl of fruit cocktail, not bad for a guy that had a feeding tube put in a year ago because I could not chew or swallow. My...
  8. rose

    I found travel caps that fit the FIFO bottle

    I posted about this bottle on the tips tricks and gadgets forum, but wanted to put a follow up post here. The caps I got for the bottles do fit with zero leakage, so that way no danger of a mess if the bottle gets turned upside down in your bag if you're out and about. Welcome! | Tube Chic |...
  9. Nuts

    Not Feeling...

    It's been some time since I've been able to make much of a post. I think of things I'd like to share, but then I just can't. What's that about? What is this part of the rollercoaster that leaves me not feeling. I think. I respond. I plan. But I don't seem to be able to feel. This past...
  10. rose

    Frequent meals! How often do you feed/eat poll

    How many of you with a peg eat more often than every four hours? I'm one of those who experience the sucking in, then popping out of my peg, and I've read that its because the stomach is trying to "eat" the balloon. I don't know if that is really true, but it makes me more interested in...
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