meals

  1. S

    Vitamin supplements

    Hi, I am new to the forum, I have joined as my father in law was diagnosed with MND in Dec 2008, and up until a few months ago he was still quite mobile, but his health/strength has deteriorated in the last few months and has recently been in hosptial to treat pneumonia. I cook him highly...
  2. LauraW

    Guilt

    We finally got to get away for 3 days. We had a family member who is a nurse's tech and has sat with Mom when she first came home a few days a week for a couple of hours each day. She knows the routine. She has suctioned, was trained by our resp therapist, has fed Mom. I tried to make it as...
  3. S

    Struggling

    My practical mind is struggling with my emotional mind. We accomopanied my dad yesterday to a follow up appointment at the ALS clinic he attends. The main purpose was to review the most recent breathing assessments and his swallowing assessment so he could make a decsion about a PEG, ( this had...
  4. G

    Daughter of PAL venting

    I joined this site when Mom was first diagnosed in June of 08...she is 72......i haven't posted since that year......this disease has just steamrolled itself into our lives....i feel the need to connect with others experiencing it too, and maybe even help someone else? i am so very...
  5. pvale

    I'm baaaaack........

    Well, we did it, got all moved in one long weekend. We are stuffed into this one bedroom handicap apartment, and a good lot of our stuff is in storage. This apartment has a handicap accessable kitchen sink, and I can get under it with the wheelchair. Bathroom has a roll-in shower, and ALSA...
  6. M

    Getting to grips with the diagnosis

    Three weeks since my partner was diagnosed and I'm feeling worse than I was a week ago..........I consider myself a strong person but it seems my usual coping strategies are falling apart and I'm feeling so raw. My partner, who after all, is the one who has to really deal with going through...
  7. S

    Question for those who don't eat any more

    My mother is finally unable to eat orally, at all. In the past week she has gone from eating 3 pureedm meals a day and some thickened fluids to nothing at all apart from her peg nutrition. Now, how do we ensure her mouth ensures clean and healthy and free from fungal infections, bacteria and...
  8. L

    Need advice...when to start tube feeding

    Hi everyone, I've been reading on this forum since November, but I now have some questions that I know only you all will be able to help me with. First I think I need to give some background history. My mom who is 74 was diagnosed'ed with frontotemporal dementia (FTD) in May 2007, and ALS in...
  9. ZenArcher

    VA Formulary

    I've begun to supplement my meals with Ensure Plus in an attempt to add some weight. So far this is working well other than the fact that Ensure isn't cheap. Out of curiosity I looked it up in the VA formulary and there is was. For those not familiar with the formulary it is a list of all drugs...
  10. A

    Worried about Daughter-in-law

    My son was diagnosed nov 2008. Has lost use of arms, hands, legs and speech is very bad. He had his feeding tube put in this week. He is very upbeat but very concerned about his wife of 1 year. She has completely shut down. She comes home from work and goes to sleep. She is constantly sleepy...
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