lyme disease

  1. L

    Scared and confused

    Hi everyone :) Thanks in advance for taking the time to read and give any insight you might have. It's truly, truly appreciated. I am experiencing some symptoms that have me scared about ALS. Prior to the ALS concern, I have been seeing a neurologist with a suspicion of Lyme disease (and have...
    • lkc1981
    • Thread
    • als back balance clinical confused cramping fasciculations fingers lift lyme lyme disease muscles neurologist questions scared speech swelling symptoms tongue twitching vacation weakness
    • Replies: 2
    • Forum: Could this be ALS?
  2. M

    Misdiagnosis possible? Anyone looked into Lyme Disease?

    Guys, I've been reading a TON of articles about how so many people have been misdiagnosed with ALS but actually had Lyme Disease! Does anyone have any experience with this? Does anyone in Ontario know where to get tested for it properly? Apparently 50% of people bitten by a tick don't even...
  3. V

    A few questions

    Hi all! Im not really anxious about the thought of having als. But i do have a few questions regarding some symptoms i have been having. I noticed a whole body fatigue and weakness in arms and legs. Which arent typical als. But then i noticed that carrying a gallon of milk def feels way...
    • Valleyhope
    • Thread
    • als cramping diagnosed emg fatigue lyme lyme disease muscles neurologist night questions second opinion symptoms twitch vitamin d weakness
    • Replies: 7
    • Forum: Could this be ALS?
  4. F

    Newly diagnosed and devasted

    Hi everyone, I am newly diagnosed (12-29-15) with ALS. Since my dx, I've been devastated. My mom passed away in August and I was in a pretty deep depression over that when I got my dx a couple month later. I feel like I was hit over the head with a sledgehammer, and that wasn't enough so I...
    • Firefly
    • Thread
    • als arm breathing dementia depression disability dry mouth emg heart lyme lyme disease memorial mri myasthenia gravis neurologist newly diagnosed sad second opinion speech story support swallowing test weakness wrong
    • Replies: 13
    • Forum: Newly diagnosed
  5. kitkat

    PK Protocol?

    Hi Everyone- My husband was diagnosed just a few weeks ago, after several months of tests & etc. So, now we're getting the "have you tried this or that" from well meaning friends and family. One that actually piqued our interest, was PK Protocol, which is also used to treat Lyme disease and MS...
  6. Scotiaspirit

    MND or other Neurological Disease ?

    I am awaiting a neurologists exam with further testing to either rule out or rule MND as my doctor refers to it. I am now 53 years old. My symptoms started about 1 1/2 years ago. Over that time, I have lost over 60lbs, unexplained weight loss; despite trying to diet other times in my life, I...
    • Scotiaspirit
    • Thread
    • ankle atrophy baclofen confused cramping cramps diet fasciculations fear ice increase lyme lyme disease medicine mnd motor neuron disease muscles nursing home pain problem shoulder stages symptoms testing tests tiredness weight loss wrong
    • Replies: 15
    • Forum: Could this be ALS?
  7. M

    None of this makes sense

    I am having yet another EMG on Friday to try to understand what is happening to my body. General feeling of not feeling well in Jan 2012. Lyme disease? Tested but not CDC positive. Start with Neurology in Sept 2012. Stiff neck and Fasciculations start in my left calf Sept 2012. EMG...
    • Merepage
    • Thread
    • als breathing cdc clean emg clinical emg fasciculations fatigue flu lyme lyme disease muscle muscle wasting neurologist neurology night onset shortness of breath tongue tongue fasciculations twitching umn weakness
    • Replies: 18
    • Forum: Could this be ALS?
  8. R

    Anxious about symptoms

    Hi all, I am here because, naturally, I am worried I might be exhibiting symptoms of ALS. I know it would be rare to have it at my age [25 years] and my gender [female], however, it does happen. I haven't been exhibiting symptoms, knowingly, for very long. I have had a few leg cramps over the...
    • reanne2489
    • Thread
    • advice age als anxiety atrophy back bed clinic clonus coping cramping cramps crying early emg family fasciculation fasciculations female foot drop heart ice lift lyme lyme disease mri muscle neurology night onset pain pls progression shower sleep spasms symptom symptoms symptoms of als testing tests twitches twitching ultrasound update weakness worried wrists
    • Replies: 18
    • Forum: Could this be ALS?
  9. L

    ALS Diagnosis - But Noone has seen these symptoms?

    I am writing this post in hopes of finding someone with similar symptoms to mine and some idea of what might be happening to me. I have been diagnosed with ALS even though some of my symptoms do not fit the disease. I have seen three top ALS doctors who have said they have never seen symptoms...
    • Looking4Help
    • Thread
    • abdomen advice als atrophy back brain clinic denervation diagnosed diagnosis emg family finger foot ivig lyme lyme disease mri muscle muscle weakness muscles neurologist pain paralyzed pennsylvania questions symptoms symptoms? tests treatment treatments weakness worry
    • Replies: 5
    • Forum: General discussion about ALS/MND
  10. X

    ALS EMG vs Neck Injury EMG?

    I recently had an EMG and it showed small abnormalities in the Left Supraspinatus (+1 Fibs) Left & right Rhomboid Major (+1 Fibs), and right Cervical Paraspinal Low (+1 PSW and CRD) muscles. The doctor said these alone didn't have the characteristics (sounds, look, etc..) of ALS but of possible...
    • Xfile1966
    • Thread
    • als als? arm atrophy back confused emg emg? genetic lyme lyme disease mri muscle pain muscles neurologist pain problems second opinion weakness
    • Replies: 28
    • Forum: Could this be ALS?
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