love

1 Month Warning. That's what I just gave the family, via the private family FB page. One month of no quality, coherent time with Matt and we will be taking him off the vent. He was clear headed about a week ago just long enough to tell me that crazy communication doesn't count, so when he's...

Hello everyone and thanks for this forum, for the opportunity to ask all the worrisome questions. :) Here are mine Well, it might be not exactly a question for me after all) I'm afraid I've got ALS because I've noticed I can't move my left thigh muscles (around vastus medialis, I think) It's...

hi all I just found out that reading the closed thread “ I know it’s silly but “ helps us understand how pals may feel and get to know the path of people on the forum. It is both sad and soothing. Sad you guess why. Soothing because what we guessed is expressed clearly with love Really...

As many of you know, I have 4 wheelchairs, one of which has been funded by private insurance. The other three we bought used for particular purposes. The wheelchair funded by insurance is a Permobil C500s VS, which was ordered 4 years ago this month and arrived in January of 2015. It has over...

You’re all going to think I’m crazy..I know. I promise I’m not chasing this disease. I just want support through my journey. I just want to ask if I could hang around here with all of you, I love all of you. Your stories inspire me and talking to you all makes me feel so much less pain. It helps...

Some of you will remember last year I got vacuuming and mopping robots. Yes I still love them. The roomba however appeared to die. I thought it was the battery as it had looked like it was charging until suddenly it was completely unresponsive. It turned out though it was the charger even...

Hi everyone. I have read through so many threads before joining and I think this board is a wealth of knowledge and a breath of fresh air from all of the scary stuff on google. I’d love it if you could offer advice on my symptoms, which seem a bit quirky to me. Any feedback is greatly...

Hi Everyone, I know its been awhile since I have posted. I just felt that today was right. The love of my life has decided that the time has come to end the fight. He's been an amazing fighter for over three years. He dealt with this disease with far more postivity, and courage then I ever...

Doubt anyone reads this things. Just wanted to mention my Dad passed. Came to this forum a few times for a help and it was much appreciated. His ALS moved so quickly we were unable to get him any of the benefits he deserved for being a veteran. I tried my best for my Dad. My heart goes out to...

Hi all, I want to start by saying thank you in advance for any advice/support you can give me and for welcoming me to the forum! My symptoms started almost 8 weeks ago, where I noticed twitches in my left arm and shoulder. They were big thumpers that I could see through my shirt which led me...