love

  1. S

    A year has past...

    This morning at 4:11 was one year since the love of my life became free of his hell. Or should I say our hell... I don't even know what to think about that. The hell we went through, is more than I can believe actually. Honestly, how do any of us make it through that? At 4:11, another kind of...
  2. P

    Seeking Permobil F3 Wheelchair

    Hello, I am hoping to find a used Permobil F3 or F5 wheelchair for my father soon. His current wheelchair does not have a tilt or rise feature which he will soon need. I live in Oklahoma, but am able to travel for pickup. I saw that soonerwife was selling one a few months ago, but I'm...
  3. N

    My PALS is now in heaven

    My love is gone. I feel numb and lost even though I thought I was prepared for this. He hung on so so long, I don’t know how, but he did. This journey has forever changed me and my family. The little ones seem to be coping okay so far (way more clingy though), and I am trying to find a new...
  4. P

    Interabled relationship advice

    Hello everyone. I am in a relationship with a beautiful man who happens to have als. We met when I began helping him as his caregiver. We have so much in common and just hit it off immediately. I know he is ill but I still see HIM the man and not the illness. I watched a documentary where the...
  5. B

    True Event - Scammer Scammed!

    :lol: If you have been annoyed by scammer e-mails, this is for you! It’s about time they get some of their own annoyance returned to them. I love it! The guy’s a genius. B. https://youtu.be/3MHDDSekvcE?list=RDf5d8pVg3Qtg
  6. Nuts

    Matt is gone

    We set my darling husband, Matt, free today. He made me promise to do it, but he clung to life even when life offered him nothing but pain. He was a fighter to the end. He was comfortable, and he did not appear distressed--but he was stronger than anyone imagined. He was surrounded by his...
  7. B

    concerned symptoms.....not sure what to think

    Hello, First off, I had been lurking here for about a year now and read the sticky note and that is why I haven’t posted anything yet. My thoughts and prayers are with you all who have this disease! My situation is a little different and would love for you some advice. Even if you told me to...
  8. C

    Yahoo article

    Opened Yahoo this morning and there was an article about an Australian man's recent passing from ALS. https://www.yahoo.com/lifestyle/will-leave-broken-body-full-heart-mans-heartbreaking-final-facebook-post-inspires-messages-love-gratitude-165901361.html
  9. Nuts

    1 Month Warning...

    1 Month Warning. That's what I just gave the family, via the private family FB page. One month of no quality, coherent time with Matt and we will be taking him off the vent. He was clear headed about a week ago just long enough to tell me that crazy communication doesn't count, so when he's...
  10. S

    Left quadricep weakness and ALS

    Hello everyone and thanks for this forum, for the opportunity to ask all the worrisome questions. :) Here are mine Well, it might be not exactly a question for me after all) I'm afraid I've got ALS because I've noticed I can't move my left thigh muscles (around vastus medialis, I think) It's...
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