love

  1. B

    Tobii PC eye mini for sale

    I have a Tobii PC eye mini used about 5 months works with lap top or desktop paid $2000 asking $1000 or best offer.this was great when my love could no longer use his hands. Blessings, Pattie [email protected]
  2. KatieNBoyd

    A CALS wish to PALS

    Hello, I do not want to impose myself on the group but I have a tiny request that I wanted to put out there. My PALS, my husband was diagnosed in Oct 2015 (there were signs that began Dec of 2014) he left me Friday Dec 9, 2016. He had ALS + FTD so most of the things that have happened in the...
  3. A

    Three years and still going!

    I tried to add this as a blog, but thought I would put it here as well. Three Years Today I celebrate the three-year anniversary of the worst day of my life. I was so scared that day, looking ahead to life in a wheelchair, giving up all independence, and being such a tremendous burden to my...
  4. chally

    21 century cures act

    Hey all did ya see that this act passed senate and now just need pres to sign. What it means is a boat load of $$$ will be available for research and streamlining possible drugs that could help folks. This is what we were advocating up in DC last spring for. So there's some good news. Love ya...
  5. D

    I have to leave....

    I thank everyone past and present for all the information and support provided on this forum. This forum was my lifeline and best source of information. My love passed a year ago this October and it tears my heart out every time I come back now. I think I was numb for so long but it keeps...
  6. H

    My daddy, was diagnosed!

    On April 18, 2016 my dad was diagnosed with ALS. Upon his diagnosis it was so hard to not cry every time I was in his presence( I won't cry in front of him because it makes it harder for him), you see I love my daddy tremendously I'm a daddy's girl and to see my old man who isn't really that old...
  7. tripete

    2 Years ago - The End of Days

    Today marks the second anniversary of my first ALS diagnosis. We lived in Northeast Georgia at the time and had traveled home to Pennsylvania for the long Thanksgiving weekend. On Sunday of that weekend we drone form Pennsylvania down to see Dr. Pulley in Jacksonville, Florida for our Monday...
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